Nissen/Fundoplication Questions...

Christina - posted on 06/14/2009 ( 17 moms have responded )

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Are there any mom's out there who's children have had this surgery? This might be something that we have to get done for our 2 1/2 year old daughter and I have so many questions I would love to ask!

Also if there are mom's out there who have had the surgery suggested but decided against having it performed, I would love to get your feedback as to why you decided against it.

Thanks everyone!!

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Ali - posted on 07/11/2009

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Hi - my daughter Amy had a fundo done 2 years ago due to cronic reflux and aspiration. They had told us she would be in hospital for 5 days after but it ended up being 10 days because it took awhile to get her to accept her g-tube feeds again. The scars are minimal because it was done laproscopically so just 5 little scars. It was a little tough for the first few months afterwards because she couldn't burp or let gas out and would get terribly bloated and cry from the pain (my daughter has down syndrome and autism so she is non-verbal which made it hard to tell what was hurting her). At the beginning I cried because I regretted having it done but then after 4-5 months when things got better I changed my views on the surgery. Now she was in hospital last January in critical care with pneumonia. She was on an oscillatory ventilator and this loosened up the fundo so she is visually refluxing again but because it hasn't come completely undone we have been told to just leave it for now and not have the surgery redone. If the reflux gets to the point it was before then we will have to discuss the possibility of having the surgery done again. You're doing the right thing by asking around and researching. Do you what you feel is right! If you have any questions let me know.



Ali

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User - posted on 02/02/2012

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Hi! My 11 yr. old son had a laproscopic nissen/fundiplication surgery 7+ years ago and it has been an excellent experience. Life was so much better for every body in our home from then on.

Do you have specific questions?

i would NOT recommend bilateral hip osteotomies for any child is NOT in pain or show no signs for needing the surgery. my husband and i were encouraged to do this surgery Before my son became uncomfortable. Very bad idea…

He has had other surgeries in case you have more ?'s~

I just realize that you posted that ques. back in 2009 so my answer may be unneccesary, but i'll post it just in case it could help some one else

Holly - posted on 07/09/2009

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Hi Christina, Our daughter Katie (now almost 13) has had a gtube since about 18 months old and nissen fundoplication surgery at about 4 years of age. Katie has multiple disabilities and many special needs. Without question her fundo has quite simply been a life saving success. Repeat bouts of aspiration pnuemonia caused by severe reflux (and aspiration of tube feeds) prompted the need. Initially it was keyhole surgery with minimal disruption and no complications - just the normal recovery process. I will add though that it failed about a year later (just one of those things) and a revision done. The second surgery was enormous in that it had to be open surgery .. took months to recover and I remember after about 5 weeks crying and questioning why on earth we had gone ahead. But suddenly things improved, Katie started to recover in leaps and bounds .. and today there is no question in my mind that we did the right thing. We have had no problems since that revision. Katie has chronic lung disease due to her repeat bouts of aspiration, so anything we can do to keep fluids away from her lungs, we do. She still aspirates saliva which creates similar complications but life is far more settled. I am really happy to answer questions you or anyone else may have. It is a big decision to make .. but one I am so glad we made . In our case, if we had not, our little angel would most definitely not be with us now. Best Wishes, Holly

Barbara L. Manley - posted on 07/09/2009

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MY DAUGHTER WHO IS KNOW 14. BRETTANIE WAS 2 AND1/2 MONTH WHEN SHE HAD THE FUNDOPLICATION AND G-TUBE PLACEMENT DONE.SHE HAS A TERRIBLE SCAR FROM THIS.SHE WAS BORN WITH GERMAN MEASELS. STILL TODAY SHE HAS THAT GAG REFLEX.YES THE SURGERY MAY WORK BUT I DON'T UNDERSTAND HER GAGING! IS U LIKE A PICTURE OF HER SCAR LET ME KNOW. ALSO MY DAUGHTER IS DEAF AND HAS CEREBAL PALSEY.I LOVE TO TELL MORE.BUT BRETT GOT THE SURGERY JUNE 16,1995 AND THE G-TUBE CAME OUT MAY 1995. I JUST HATE THE SCAR'S IT LEFT BUT I TELL EVERYBODY SHE HAS 2 BELLY BUTTONS.

Shari - posted on 07/09/2009

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We chose not to do it for our son. We weren't happy with the % rate of success. We had also known of three children that had it done and only one of the three were doing well afterwards. One little boy had multiple new issues because of it. The one that had success said it was the greatest thing ever.
It's a tough decision to make. Weigh your options. We all try to do what is best for our children...I'm sure whatever decision you make will be for the best.
Blessings to your fam!
Shari

Gina - posted on 07/08/2009

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My daughter had a Nissen and open G-tube revision just over a year ago due to reflux causing episodes of sudden-onset stridor/respiratory distress. She is multi-disabled (Bohring-Opitz Syndrone): non-ambulatory, non verbal, global devel. delays. She was at increased risk of having a lot of gagging and retching after having the Nissen, but after much debate we decided to do the surgery. She has done well, with no gagging and retching. Thank Goodness.

Megan - posted on 07/08/2009

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sorry. i forgot to say that em also has horrible gerd but only since they placed her g-tube.

Megan - posted on 07/08/2009

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i was advised by some doctors to get one for my daughter em. she is 10 months old now. i chose not to get one b/c my husband had one done two years earlier and is still having complications now three years post surgery. he lost 40 lbs in about 2 months. he was so sick he couldn't eat anything. they did a ton of tests and found he had ulcers and gastritis but nothing that would give him such severe aversions. in the end they came up with the fact that maybe his wrap was done to tight. we didn't buy it as the only reason but it was the best they had.
em's doctors weren't happy when i refused the procedure and even tried to guilt me into it. i am not saying it should always be avoided but if you can get away without it i would. my daughter also showed signs of aspiration on her swallow studies but has never had and lung problems. it is a tough decision to make but trust you gut. let me know if you have any other questions about it.

Laura - posted on 07/06/2009

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I have a 2yr old little boy that I am also have the nissen done....I have our surgery consult tomorrow so I'm curious what the surgeon will have to say....My little guy is 100% g-tube fed......has terrible gerd....dev delay..(newborn development)....cortical blindness....seizure disorder......has had a ton of genetic/metabolic testing done but no official diagnosis as of yet........I think the nissen will help my little one alot....I hope.....Good luck to you and your little one :)

Suzanne - posted on 07/06/2009

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Hi All! My son had a Nissans and Gastrostomy done about 12 weeks ago, he was just over 2 1/2 years old. He has numerous other health issues (no formal diagosis but dev delays, hearing impaired, low muscle tone, absence siezures and is not walking or talking). We were very worried about the surgery as he had a bad reaction to a recent GA. But suprisingly he coped very well. He was in hospital for 7 days, but recovered quickly. He could not take anything orally for a couple of days (he is now mainly tube fed, but does also take food orally to keep his skills up.). The surgeon said the the operation had a 70% chance of being successful, and from what I have observed seems to have been. I was also really worried about how my son would cope with swallowing etc, as some gagging etc is unavoidable, but this also has been minimal.

For us, there wasn't that much choice, we found out he had very bad reflux (silent, no symptoms) and had had a nasty pneumonia earlier in the year due to aspiration. So his chest health was the priority.

I hope this helps, I live in Adelaide, South Australia. We have an excellent children's hospital here and the surgeon that performed Louie's operations was highly experienced and skilled.

Good luck and I hope if you go ahead with the operation that it all goes really well.

Take care.

User - posted on 06/16/2009

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Hi there. My daughter had both done at 3 weeks of age due to she could not swallow or eat with her mouth. The surgery was not a huge scary one at all. Left a small incision in the area just about her belly button, and now she has a wonderful Mic-Key button feedings. Also her reflux completely went away. Feel free to email me with any questions. k_davison@verizon.net.

Kathy - posted on 06/16/2009

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recovery wasn't to bad, and they did it laproscopically so there were only 5 tiny insisions.(remember- He also had a haital hernia repaired) There was no G tube- clear liquids for a day or so then back to reg. diet as tolerated. They kept him on nexium for about a year or so to help heal the esophagus. Unfortunately for my son ( not typical for most) he had GERD to long and it caused him to get Barrets Esophogus. The nissan was a total success.some kids do end up on a g tube, and our doctor had been pretty sure he'd be one( on a scale of 1-10(10 the worst) he was a 9 1/2.I'm not sure why some need it- likely a worse scenario- maybe because they had extreme complicated issue with the digestive system? or a underlying complication from another health issue?


There is no adjusting as they grow- it goes with the stomach. There will be periodic EGD's to check the success- but that's it. My neice that had it several years ago( she was about 12) had it before there was laproscopic, and she had a much more restricted diet for a bit- but for her it was the best thing ever.She';s in her 20's now and had no reoccurences, the only thing she does is the typical avoid carbonation, caffeine, spicy foods.She didn't have the stricture. My niece said for her there was little pain.- and judging from how fast my son went back to eating regular food- I'd say it wasn't painful for him either.



There are side effects- my son has periodic cases of diarreah( i can never spell that word) its due to the stomach emptying too quickly into the colon, and then the colon gets overloaded (lol) .By the way- my son was 10 at the time- he's 15 now. He's up to EGD checks every 2 years now.

Heather - posted on 06/15/2009

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what was the recovery time like? Did he have to have a g tube or anything like that? Did the Dr say anything about having to have it adjusted as he grows?

Kathy - posted on 06/15/2009

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Yep- my son had it done 4-5 years ago and it was a success. My niece also had it done about 10 years ago and it was a success for her too. Unfortunately for my son his Gerd had gone unchecked for way to long and a stricture formed- after that was treated successfully the Nissan was done to prevent further issues. Feel free to contact me.

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