Occupational therapist wanting to drop my son because.............

Terri - posted on 09/22/2009 ( 21 moms have responded )

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He can write good! How crazy is that?!?! The thing about it is that he is right handed and he has problems with the left side not the right! I told her that writing will not get him thru life. I also told her that I will be very prepared for our meeting thursday night with a list of fine motor skills that he needs to work on. I am sure that will make her happy! My son even tells me he still needs it and he knows what he needs work on. These are times I get really frustrated because some therapist think they know your kid better than you do.....not the case!
I have tried to fatham why they would cut him and maybe its because they are cutting special education funding .............no excuse and whatever happened to the " NO CHILD LEFT BEHIND?" I will always push for my son and daughter to get what they need if it kills me. They deserve it just as much as the next child.

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Sabrina - posted on 09/23/2009

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its messy when you have to fenagle and bargin with the opions of therapist types who have so much weight. make your argument a "quality of life" issue.
does your observation of his current motor skill level affect other areas of his life?
eating, his ability to prepare food, playing, bathing, tioleting,dressing, brushing teeth ( self care )
if so...
start documenting every thing!

you get that dccumented into his IEP file! make them make copies and put it in his school cume. period.
you call an IEP meeting if you have tom in fact i recommend it...dont discuss anything without it if you need to go that route.
check your district handbook and ask if you can record the meeting.

thats a LEGALy binding contract.....so remember, NOTHING CHANGES without your consent.
they push you to drop services, you dont sign a thing. period.
they ask you to sign a modified contract...do not do it!
your response..thank you for your input, ill be taking this information home and thinking it over. Ill be in touch.

above all...
keep the mamma bear attitude.
chin up....

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21 Comments

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Joni - posted on 10/14/2009

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Been there, done that! My daughter has epilepsy & CP. When she was 3 her "new" OT said she didn't have any sensory issues, therefore didn't need OT anymore. This was after 3 VISITS!!! I demanded and IEP meeting and kept fighting the system. Everytime they hit you, hit back harder!!! It's frustrating since you know your kids better that anyone. Keep the faith, and keep and keep fighting. Eventually they will tire out before you will!!! Good luck!

Ericka - posted on 10/13/2009

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I had the same problem a few years ago with my son's speech theapist. she wanted to drop him says he can talk in senteces (sp). I did put my foot down and had to get ugly with them. sure he is now talking but so much goess with it. understanding written and verbal words. Come to find out they were just tryin to lighten there case load. But stay in for the fight. You can win it. Good Luck and God Bless You and Your Family!

Janene - posted on 10/08/2009

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She may be an expert (obviously not!!!) in her field, but you are THE expert on your child!

Trista - posted on 10/07/2009

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I hear ya girl... my daughter has cp and her pt said she deserves an app every week but she would not recieve it bc there isnt enough funding..

Linda - posted on 10/04/2009

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If you are in the United States check and see if your area has The Arc. You can find your state on The Arc of the United States. The Arc will go with you to IEP meetings, etc. They advcate for people of all ages with intellectual and/or developmental disabilities. They know what can and can't be done.

Kelly - posted on 10/03/2009

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I know exsactally what you are talking about,my daughter was just taken out of OT b/c they said she is not gaining anything for the past 2 years and she needs a break for 3 months! I think that they are wrong and asked them what my daughter was having trouble doing they told me MAZES!!! Go figure! Well anyways she is able to go back in Dec. I feel it is wrong b/c they are quiting on her what makes them think that is a good thing! She goes to Good Shephard in Allentown! My daughter also gets OT in school where she is in a special educational class with kids with disabilities and they are only giving it to her in school for 30 min. a week what is she gonna learn from that?

Lynn - posted on 09/28/2009

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I would say no they can't do this. If you signed a contract with them, then no they can't. Contact your states disability rights center, they can help a lot, even give your child an advocate that will help you fight for his rights in school and therapy.

Wendy - posted on 09/26/2009

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My son's OT called and left me a message because we missed a session which I had called and informed them we wouldn't be there but evidently no one told her. Her message stated if you want to continue OT then I need to hear something by 5 pm. I called and left her a voicemail and spoke to the receptiomist saying yes we did. The OT called the next day and said well I didn't hear from you so I dropped him and if you want him back in your have to go back on the waiting list. I told her look I left you a voicemail and told the secretary that schedules we did but she said well no one told me so you'll just have to reapply and go on the waiting list. Can they do this? This woman is hateful and no one in the office will help us it's ridiculous.

Lmf64 - posted on 09/23/2009

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Yes, the school does have to provide what your child needs to succeed. BUT don't rely on them to determine what it is the child needs. Get independent evaluations done and then call an IEP meeting. I have gone so far as to have the professionals who did the evaluations come to meetings. As a matter of fact we have monthly IEP meetings to go over the previous months' progress and my son's pdoc attends most of them by phone and 1 or 2 in person. Her office is over 50 miles away so not only is the meeting time costing so is the transport time, but it's worth it. The school doesn't like that I refuse to meet with them without back up. My son is a handfull and they want to get rid of him. But with the proper back up (professionals) attending the meetings we've finally got a plan that's working.

Elizabeth - posted on 09/23/2009

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I would keep fighting with the place that does his occupational therapy. If you have to go over her head

[deleted account]

Quoting Terri:

Megan: I find myself crying at times just because its like no one wants to help or they don't seem like they have enough heart anymore. When my son first started therapy 12 yrs ago, everyone was great! They went out of their way to help out. Now it seems to be a chore. UGH!!!!



Ive noticed that as soon as my daughter was in school it was no more nice therapist. She had awesome therapists up until age 4 then they switched her over to the school system and ever since then its been report after report of "she no longer needs services" ack!



 



I recently took her to a pediatric orthopedic specialist, she is going in to get leg braces (the same darn leg braces that her original workers changed their minds on her getting in the first place) mind you I had to go around the school system just to get her checked out.

Terri - posted on 09/22/2009

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Megan: I find myself crying at times just because its like no one wants to help or they don't seem like they have enough heart anymore. When my son first started therapy 12 yrs ago, everyone was great! They went out of their way to help out. Now it seems to be a chore. UGH!!!!

Terri - posted on 09/22/2009

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Lisa: Exactly! It just always seems that is has to do with money. You just don't get into that field if you don't want to help kids. I have fought for years for my kids to get what they need and always remind them that you are required to provide any services and help my child reach his goals and master them. The IEP isn't just some piece of paper. We have those for a reason. Sometimes I get so sick of these people that I can't even see straight. If I could home school my kids I would but therapist would totally break me. My son asked me since they want him to stop O.T. "Does that mean its going to be a court battle?" I said no, its just sometimes we have to do what need to do to keep things going for you.

Lmf64 - posted on 09/22/2009

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What part of IDEA, IEP and FAPE does the therapist not get? If your child needs the assistance the school is required to provide it whether they want to or not.

[deleted account]

I know what your going through, my daughter still has walking issues shes had since she first started walking. Her therapists excuse to not see her anymore was since she could get through a day of school she didnt need any help. yeah well the therapist doesnt come home at night and listen to her scream in pain at night when the school makes her walk or run too much during the day!







its great that you have a list of things to work on, hopefully she will really look at it all and work with you guys on it.

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