ONH- SOD

Jessica - posted on 01/08/2009 ( 9 moms have responded )

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Hi there, I am from Ontario Canada and am wondering if anyone has children with ONH ( Optic Nerve Hypoplasia ) - SOD ( Septo Optic Dysplasia ) ??

Just looking for other families to talk with... thank you in advance

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Iridescent - posted on 02/25/2011

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This is 2 years old, so I will lock it. You are welcome to start a new post.

Amy

Shauna - posted on 02/25/2011

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Im no where near Ontario. But My son has has SOD/ONH. Hes 13months. I talk to another mom thats 1000 miles away whos son is that same age and going thru alot of the same issues with his SOD... it helps alot. The moms here are all great. here if you need us :)

Rachel - posted on 02/01/2011

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not in Ontario, but have an almost 3 year old boy with sod and cp.. here if you'd like to chat!

Jessica - posted on 02/06/2009

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Thank you everyone for all of your comments, I was wondering if anyone is close to Ontario Canada?

Cher - posted on 02/04/2009

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I have a 3 1/2 year old sone with ONH, hypothryroism, growth hormne deficiency, mild delays and sensory processing disorder. 

Lia - posted on 01/15/2009

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my daughter has SOD. along with the nystagmus and all. she also has a multitude of other disabilities

Crystal - posted on 01/15/2009

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My daughter has Optic Nerve Atrophy from the resection of a brain tumor and it caused her to become totally blind and among other things, endocrine issues.

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