Kerri - posted on 02/12/2009 ( 10 moms have responded )
I am new to this group. I have a son who is 15 who has Duchenne Muscular Dystrophy. I have spent the last 2 years working on a degree in Social Work and still have 3 more to go. My focus is children with handicaps and mental illness. I have found, through issues with my own son, that other parents and the schools really DON'T GET what the real issues are. For instance a few of mine have been, transportation, school assignments, help at school for my child, activities for him to be involved in, resources for medicine, equipment and specialized clothing, not to metnaion the every day stress and struggles of dealing with a special needs child. Those are just a few. I would love it if every mother on here would give me at least their top 3 issues that are the hardest thing to deal with. Also, through sharing our issues we might make other parents in this group aware of some resources they do not know exist. Please feel free to leave a comment that is long or short, either way, I will read each and every one!