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Problems entaining my child during peg feeds

Jodie - posted on 12/20/2010 ( 5 moms have responded )

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Hi all i have a four year old son with a very rare disease that effects his muscles and swollow etc.His been peg fed all his life no food or anything allowed but just wondering he has to be siting for an hour 4 times a day to be fed and now his just started walking its becoming more difficult to get him to go in his chair to have his bottle,just wondering if anyone knows if someone has designed something so the kids can play and be peg fed without having to be stuck in a chair for an hour 4 times a day

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Jodie - posted on 06/18/2012

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That would be great Thankyou michelle he is undiognosed everything possible has been tested and nothing so far! i have heard of the feeding pump backpacks just recently thankyou for your help :)

Michelle - posted on 06/17/2012

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as far as the being able to play whule on the feeds he can use the feeding pump backpack. If you don't have one there are many people that make them. What medical condition does he have? Friend me on FB & I will put you into a couple of groups that will be more than happy to also help with this.

Jodie - posted on 06/17/2012

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thanks michelle ans sharlene great ideas we do books and stuff like that i am trying crafts and stuff he has a big problem with concontrating for more than 30 secs on an object he watches dvds and tv sometimes but not really that interested his peg feeds go for an hour so when he doesnt stay amused that long it makes it a bit harder.

Sharlene - posted on 06/11/2012

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Have you tried a bean bag ,that might slimlute him and put on his programs that he likes to watch or a favorite toy.good luck

Michelle - posted on 06/10/2012

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My son has Mitochondrial Disease & has a peg tube. He plays his wii or with his DS. We've done books, make up stories, crafts all kind of things. He is 11 now & still loves all of that & he was dx'd with Mito @ age 2 1/2. Hope that helps. You can also friend me on FB. Michelle Bowen Ingram.

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