quadriplegia cerebral palsy

Becky - posted on 03/15/2009 ( 8 moms have responded )

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hi everyone, i have a baby daughter with mircocephaly and cerebral palsy she cannot sit walk or stand up. she is 18 months old i was wondering if anyone knows of a toy i can buy her that she can play with as im stuck she is bored with play gyms

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Heather - posted on 04/17/2009

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Hi! I have a 5 yr old son with microcephaly. We haven't had a CP diagnosis, but it has been tossed around. When he was about a yr old we got a leapfrog exersaucer and could pack him in with towels to give him some trunk support. He loved it! We also had a Tumbleform support chair on wheels with a table to put cause/effect toys that he could bat at to activate. Another one of his favorites was a swing- like the red fisher price one with a tray that he could play on. We've found that using the sticky stuff that goes under a rug on his trays keeps the toys in place. I don't know where you live, but you should have early intervention (your pediatrician would know of them) available to you, they can give you lots of ideas.

JoAnne - posted on 04/10/2009

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First off you need to get her a supportive seating system so that she is able to sit up with proper support. Early Intervention is great, My son loved and still loves toys that he can activate and get a cause and effect reaction from. Leapfrog has many toys that are wonderful. My son loved the ABC ball and the drum. The ball is on a stand so all the baby has to do is roll it and it is easy to activate, it can also come off the stand. If you are looking for something cheaper, try musical instruments like maracas, drums, xylophone. Also try getting your hands on a copy of the ToysRus special needs catalog. They have some great ideas for kids of all needs. Some other ideas are look into Oriental Trading catalog and get some porcupine balls(small rubber spike balls) adn some different shaped containers and have her take them out and put them back in, also use old wipes boxes and make velcro strips and add velcro to different shaped blocks and have her pull the blocks off and put them in her boxes. Make things challenging and she will gain interest and want to try new and unusual things. Just cause she has a disability, do not disable her from playing like a normal child.

Tammy - posted on 04/10/2009

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I have a nearly seven year old daughter with left quadriplegia (cp) we just used to get that she seemed to enjoy touching then moved into things she didn't like to touch she really liked balls so we found quite a few different texturered balls. I found the best toy she had was a tennis ball which i decorated in all sorts of colours and hung it from the ceiling over her bed she loved trying to get it. You can move it from room to room. Another area you could look at is the early intervention centers they can help you with toys and lots of other areas where you might need help and support. these people helped with my daughter.

Raenon - posted on 03/15/2009

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I have a little guy who has spastic quadriplegia..I get toys that he can activate with his button. We also have things like rattles from the dollar store that I 'decorate' with various things such as shiny reflective tape, mardi gras beads..he also has a large frame that we hang toys off of to encourage reaching and grasping.

Is your daughter able to kick her legs? We have the fisher price soccer goal that Gavin likes pretty well. He respondes to many things that play music. If you would like other suggestions just let me know. It is hard to know how to help because the varying degrees of cerebral palsy and no knowing what your daughters strengths and limitations are. Feel free to contact me if you want to talk more. Raenon

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Caroline - posted on 07/03/2012

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My daughter was born 9 weeks premmie, weighed 3 pounds & 11 ounces, she had many challenges. She was not able to walk un-assisted, she needed support to sit up, druelled constantly, developmentally delayed, frequent body tremors, kind of in a daze all the time, clenched left hand, choking on her food, speach problems, left side weakness etc tec. She was elevated on her toes when holding her to walk, she was splinted for a leg brace & they wanted to give her botox, but after researching botox and discovering how its made and there were no long term studies I decided against it. Her life was restricted & so was mine ...and it looked this way for the rest of her life ... & mine. I felt hopeless.

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Nicole - posted on 04/17/2009

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My daughter used to love to play with crinkly wrapping paper! It doesn't tear so she couldn't choke on it. She is 10 now so finding things for her to play with is getting harder & harder. We did find a remote controlled My Little Pony that she loves! The buttons are very large & she can activate it with just one finger. We can attach the remote to her wheelchair tray with velcro. Maybe her therapists can offer some suggestions also.

Brandi - posted on 04/16/2009

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My 4 y/o can't sit, stand or walk either. We got her the Fisher Price Kick & Crawl Aquarium Gym and she has started trying to reach for the hanging toys. She has also started moving & kicking her more because of the inflatable ball attachment.

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