question about foot correction

Tanya - posted on 05/17/2011

Hi Jennifer
Alot of the things you said I like my younger son , he has constipation problems has done since he was a baby been on laxatives since he was 3 months old , he flaps his arms & hands when excited , your child sounds like he has dyspraxia & autism , my sons have recently been diagnosed with dyspraxia , my younger son who is 6 has autistic traits & is having tests done for autism by cahms , I hope your doctor sees sence & gives your children the inserts , cant your ot or physoitherapist order you inserts ? I would ask as they can prescripe them to they can in england , let me know how you get on , please keep me updated , thanks good luck xxx

Jennifer - posted on 05/16/2011

thanks guys the info is very helpful i talked again with my sons pt teacher she said that they have an ortho guy come right to the school (its a school for special needs kids) and he can either fit him for inserts or special shoes depending on what he thinks is best but i would have to have a script from our dr unfortunately teh dr isn't convinced that he needs it i am all 3 of my opder kids all have teh same problem and so do i as i said i had to have inserts my whole life i still need them but unfortunately can't get tehm covered now that i am an adult and i am in pain eery day now we live in ny state and all 3 of the older kids are or have been in early intervention the 8 month old is in child find currently due to family history of delays brief hx of the kids is as follows all have ultra rare chromosome 18 abnormality which their dad also has only ones known to have it world wide right now nate my 8 yr old son - has prnotion of feet severe exthema tons of respritory issues pnemonia bronchitis exct... prone to every cold virus that comes around possible asthma undiagnosed he also hassever hearing loss needs bilateral hearing aids has open bite that will require braces in future has one on one aide in school gets ot pt speech TOD resource rm for math help has facial twitches very small stature almost in bottom percentile basically the size of a first grader and hes in third no can't tie shoes or button buttons finally learned to zip things up though uses one hand for writing and annother for eating very sloppy big handwriting global delays can be very sensitive emotionally also dosn't like getting dirty has to have extra stimulation to feel things used to drool a lot as a preschooler and not feel it potty trained at 6 yrs has problems with constipation also clumsy and gets tired quickly thats a brief description of him then there is my lovely 6 almost 7 yr old daughter she will be 7 in june rachel she is very tall for her age she can wear 10-12 clothes and size 3 shoes the size of the third graders and she is in first very clumsy tires easily has had multiple respritory problems had pnemonia 8 x in her first 3 yrs also possibly undiagnosed asthma has speech delays gets ot pt and speech if everything finally goes through at the school level still working on that very stiff dosn't bend easily also large writing a bit less sloppy than her brothers def has multiple sensory issues seems to be hypersensitive i think she has auditory defence the school audiologist thinks she may have a recoupement issue where noises are so amplified by her ears that is actually is felt as physical pain she has boughts of diahreah also has problems with getting the muscles in her eyes to line up with her papers at school but can see great very stubborn and flaps her hands like autistic kids but different not for visual stimulus but in ecitement gets frustrated easlily and moves very slowly also cant tioe shoes needs help gettin dressed then there is our lil destrocto collin age 2 1/2 he si very active both he and rachel wlaked late ect he is getting ot pt speech and teacher services he will be starting at a special needs school in july gets fixated on moving parts like opening a door ect loves buttons figureing out how things work manipulating thing s is his all time fve very smart kid he seems a bit ocd about open and close in and out things very delayed in speech about level of 12 mos also has respritory issues possible asthma has had the runs for 4 months now still no luck stemming the flow can unlock every lockknown to man hates water with a passion! can't do a lot of ot things can't jump yet ect global delays all 3 also have the no arch pronated feet like em then tehre is baby jacob my most normal one yet he is 8 mos old and so far not very far behind at least i think anyway he is trying to pull himself forward but goes in circles he can get up on all 4s and rock can say dada has only been sick 1x so far with a minor cold i am hopeing that he stays on track but am waiting for him to slow down like the others did anyway there is a realatively brief description of my wonderful kiddos maybe someone out there can give me some other ideas as to what may be going on with them i am about out of ideas anymore and am beginning to feel like the drs groan when i walk in and i hate that i just want to know whats going on with my kiddos so i can help them as much as possible in life

Tanya - posted on 05/13/2011

if your children have poor balance & are always tripping over can I ask can they tie shoe laces , do they have problems getting dressed or undressed , what is their writing & drawing like ? The reason I ask this is they could also have dyspraxia look up dyspraxia , look at the signs , symptoms & if your childrenhave alot of these it is worth while asking for a referal to an Occupational Therapist & get them checked for dyspraxia , hope you get things sorted out for your children good luck take care .

Marita - posted on 05/12/2011

You could try to get your child to a Shriners. They cover the costs for what insurance doesn't cover and they only deal with pediatric orthopedic issues. Good luck!

Jenny - posted on 05/10/2011

My daughter is seen by Physical Medicine and Rehab doctor. They prescribed the inserts my daughter wore when she was little and now they prescribe the braces my daughter needs to wear. My daughter has mild CP and she toe walks and her feet pronate in. Our insurance covers them and my daughter also has a supplemental insurance thru the Health Department called Children's Special Health. They cover whatever or primary insurance doesn't cover. When my daughter got her first inserts the insurance tried to tell us they were not going to cover them because it was a preexisting condition. She was 2 years old. I didn't understand how it could be a preexisting condition when she was so young and she needed them to help her learn how to walk. I would talk to your insurance company and see what is covered and talk to a physical medicine and rehab doctor and see what they say. Sometimes doctors are able to word things so insurance will cover.

Dorothea - posted on 05/10/2011

A pediatric orthopedic surgon, or physical medicain doctor is a good place to look. Our phys med doctor does all our DME (Durable Medical Equipment) prescriptions.

When you have insurance questions, call the insurance company. There should be an 800 or toll free number on the back of your insurance card. If you don't and they don't cover something your doctor prescribes you can get stuck with the bill. It is NOT your doctors job to know what is and isn't covered. Often if it's something that isn't "covered" your doctor can contact the insurance company and get pre-aprovial for whatever it is. Make sure you get a copy of the approvial letter, in case you have any problems. (Not like you don't have enough to do right? )

I know it sucks. It's not fair that not only do you have special needs children, and you also need them, AND you have to do all the running around and calling insurance companies and crap. But a few minutes, spent figuring out what is and isn't covered can save you a ton of money.

What state are you in? In Ohio there's a program called BCMH. I can answer any questions you may have if your here in Ohio, also look on the Family Voices web page for your state and see if they are able to give you any help.

Good luck!

Alyn - posted on 05/10/2011

I have had similar issues with doctors with my son, for different reasons. I found I don't always listen to what my doctor says, research it and find out for myself. If I didn't do that my son wouldn't have been diagnosed wilt SPD and started getting the help help he needed. Trust your instincts. I hope you find the answers you need.

Michele - posted on 05/10/2011

Amy is correct. Your best bet is to see an orthopedic surgeon. BUT, do your best to make sure it is a Pediatric Ortho. I have learned that it is true that most times, inserts are NOT prescribed for kids. This is because, very often, it will correct on it's own by the time the child turns about 7. HOWEVER, when it is painful for the child, or interferes with the child's mobility, different courses are followed. One of those courses, would be to fit the child for a MAFO or DAFO (leg braces), that assist in correcting the problem. My son had to go that route. He is now almost 7, and no longer needs to wear a brace, but certainly did benefit from them when he was younger. Best of luck!

Iridescent - posted on 05/05/2011

You get a referral to ortho.