sleeping and eating problems for baby girl 18 months old with cerebral palsy
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Caroline - posted on 07/03/2012
My daughter was born 9 weeks premmie, weighed 3 pounds & 11 ounces, she had many challenges. She was not able to walk un-assisted, she needed support to sit up, druelled constantly, developmentally delayed, frequent body tremors, kind of in a daze all the time, clenched left hand, choking on her food, speach problems, left side weakness etc tec. She was elevated on her toes when holding her to walk, she was splinted for a leg brace & they wanted to give her botox, but after researching botox and discovering how its made and there were no long term studies I decided against it. Her life was restricted & so was mine ...and it looked this way for the rest of her life ... & mine. I felt hopeless.
We were attending all sorts of treatments and therapies which cost a lot. A friend told me about some special wellness supplements from a particular company, she started taking them in her yogurt, after one week she was up walking un-assisted, it made an immense difference to her brain function, memory, balance, mood & cognition in a short space of time. I was elated!
I am so grateful to the person that told me about this incredible technology. She now has a life now ….. and so do I. Its now over 14 yrs later and she continues to take these special nutrients, now she is almost 16, in a few weeks she begins driving lessons and has just started an after school casual job in a fast paced food takeaway.
Brooke - posted on 03/17/2009
i assume shes still on a bottle? if so then maybe transitioning to a sippy cup may help her oral function to increase the ability to eat. (if the problem is inability). if not then try to introduce new foods, (is she still on baby food?) if so i found the gerber baby food is of a much better quality then the heinz.
just curious is she on a routine? i have found with my son that he couldn't handle a strict routine because his moods changed soo much on a daily basis that we let him take the reins. he has cues for eat, sleep, diaper change, bubba (which is now cuppy), and bye bye.
i think he responds better to the lack of routine because he cant do the things he sees his peers do but, he can decide when he eats when he sleeps and when he gets a bum change.
i also wanted to let you know that early intervention has made the most difference in his life. he has equiptment and a specialized daycare placement that wouldn't have been available without a referral from a physiotherapist.
i hope this all helps you and good luck!
oh i wanted to ask is she mild, moderate, severe. spastic, atonic?
Sammy - posted on 03/16/2009
I have a problem with my son sleeping also. In the beginning stages a program I belonged to gave me a DVD to follow called Sleepy Planet. What kind of sleeping probems. is your dauther having? I'm not sure which type of cerebral palsy your daughter has, but it may also incorportate with sensory issues which may then cause sleeping and eating problems...if that is the case (which it may not be)..they sleeping and eating will only get worse unfortunately and not better :( without help.