sleeping and eating problems for baby girl 18 months old with cerebral palsy

Becky - posted on 03/15/2009 ( 5 moms have responded )

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please help any advice on how i can help her sleep or eat better???

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Caroline - posted on 07/03/2012

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My daughter was born 9 weeks premmie, weighed 3 pounds & 11 ounces, she had many challenges. She was not able to walk un-assisted, she needed support to sit up, druelled constantly, developmentally delayed, frequent body tremors, kind of in a daze all the time, clenched left hand, choking on her food, speach problems, left side weakness etc tec. She was elevated on her toes when holding her to walk, she was splinted for a leg brace & they wanted to give her botox, but after researching botox and discovering how its made and there were no long term studies I decided against it. Her life was restricted & so was mine ...and it looked this way for the rest of her life ... & mine. I felt hopeless.

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Brooke - posted on 03/17/2009

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i assume shes still on a bottle? if so then maybe transitioning to a sippy cup may help her oral function to increase the ability to eat. (if the problem is inability). if not then try to introduce new foods, (is she still on baby food?)  if so i found the gerber baby food is of a much better quality then the heinz.



just curious is she on a routine? i have found with my son that he couldn't handle a strict routine because his moods changed soo much on a daily basis that we let him take the reins. he has cues for eat, sleep, diaper change, bubba (which is now cuppy), and bye bye.



i think he responds better to the lack of routine because he cant do the things he sees his peers do but, he can decide when he eats when he sleeps and when he gets a bum change.



 



i also wanted to let you know that early intervention has made the most difference in his life. he has equiptment and a specialized daycare placement that wouldn't have been available without a referral from a physiotherapist.



 



i hope this all helps you and good luck!



oh  i wanted to ask is she mild, moderate, severe.     spastic, atonic?

Sammy - posted on 03/16/2009

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I have a problem with my son sleeping also. In the beginning stages a program I belonged to gave me a DVD to follow called Sleepy Planet. What kind of sleeping probems. is your dauther having?  I'm not sure which type of cerebral palsy your daughter has, but it may also incorportate with sensory issues which may then cause sleeping and eating problems...if that is the case (which it may not be)..they sleeping and eating will only get worse unfortunately and not better :( without help.

Becky - posted on 03/16/2009

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thanks but this is why i asked as im a very very shy person and wanted ideas for in the home. thanks again

Sammy - posted on 03/15/2009

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Hi Becky,



I would advice you to go to your local "Regional Center". They help and fund for special needs children and also provide parenting classes to help you assist your baby.

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