Lesa - posted on 04/24/2010 ( 10 moms have responded )
Making hard decisions. Daniel (18+yrs old) will graduate (unofficial) in about 2 weeks. He could go to TLP house for another 2 yrs and get his diploma after finishing. Daniel is in so much PAIN with his hip. Most pain meds put him out. The Dr's have only suggested removing the ball of his femor as he has no hip socket. This would give him a free floating leg. He loves to swim and that would put an end to that enjoyment. Daniel also has osteopherosis (brittle bones). We worry so much of this moving in and out of the chair will break a bone sometime. A bachlophen pump isn't currently an option. Do we let him continue or let him be done. He is more comfortable at home (out of the wheelchair) and we could find outings for him on good days. Daneil is such a JOY and we want to do what is best for him. Any ideas or suggestions??