Katherine - posted on 06/11/2009 ( 23 moms have responded )
Are there any mothers out there who have a child with Sotos Syndrome? My daughter may have this condition, but it is very rare so I have not met any other children that are living with it. Stella is a wonderful child who, despite having some physical delays, is bright and happy. She is in physical therapy and is making great progress. If anyone out there has/knows a child with Sotos Syndrome I would love to share experiences with them.