To all the mum's with a child who has a heart condition

Kerry-Ann - posted on 10/10/2009 ( 8 moms have responded )

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Hi, i have a son who has Fallot Of Tetroalogy [ 4 heart defects ] He is now 11 yrs, we have been through alot of ups and downs since his first operation. He was born a blue baby which scared me to bits. He recently had surgury to replace a valve that he grew out of and is doing very well at the moment. If there are any mum's who have a child who has a heart defect and would like to chat with me i would appreciate it alot. I worry alot about my little man still to this day, even though the valve that he had put in is supposed to last until he is 21, there are still 3 more defects that concearn me. I don't know any other mum's who are going through the same worries and concerns and it would be great if tyson could see that he is not alone with a heart condition.

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Michele - posted on 10/21/2009

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Hi ! my son has the same heart defect i would love to be able to talk to you and i would like for my son josh to also see that he's not alone either.. don't know if i'm aloud to do this but my number is 828-582-5631 we live in Ashevillemy name is Michele

Sarah-Jayne - posted on 10/19/2009

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my son is only ten months and has TAPVR with an obstruction (a total of 7 problems in the heart), he has had 4 open heart surgeries including a bipass, so if you ever need to tlk huni, they may not have the same condition but i understand what it can be like. he was born blur too, life-flighted to a hospital out of town for emergancy surgeries..its been a very rough road, for u as well im sure, and we still have a way to go. so im here for you if you need anything. blessing to u and ur lil one!

Faith - posted on 10/19/2009

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Hello, my son has Pulmonary valve stenosis and Mitral Valve prolapse (His main disorder being Pierre Robin Syndrome). While your childs condition is far different, having a child with any heart issues can be scarey.



I wish you and your child the best

Samantha - posted on 10/19/2009

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Hello, my little one is 4 and she has what they call a complete AV Canal defect. She had open heart surgery at three months old. They had to repair a hole in the center wall as well as her valve. She was born with only one instead of two and it was fused to the bottom wall. If you need to talk or vent please do, I have been there.

Tracey - posted on 10/19/2009

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hi there my name is tracey and although my kids dont have the same heart condition as your child i have three out of four with long qt syndrome which is also a heart condition that can kill them so i know what you are going though your lucky to only have one i have three and the pain i feel is just as much as you if you need im here to talk .

Cheryl - posted on 10/17/2009

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hey my daughter has truncus arteriosus, she is 17 weeks, she had her surgery at 4 weeks, god life is so scary now. different heart condition but im sure we still have a lot in common!! here to chat if u want.

Tasha - posted on 10/12/2009

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hello, so sorry for what u have had to go through. my lil one has a hole in his heart and a valve narrowing. no work has had to be done on it though, thankfully. the cardiologists are just keeping an eye on it. we go for check-ups every 6 months. i cant even imagine what you are going through with your son, but if you need someone to just vent to, feel free :)

~Tasha

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