Brandee - posted on 12/06/2009 ( 32 moms have responded )
I just had yet another discussion with our PT about getting a wheelchair for my son. He just had his second birthday. He had a stroke at 7 months and we have been fighting seizures for months. He just had a hemispherectomy in Oct. and he is almost back to his pre-op baseline. We are so happy about the surgery and the progress we have seen, but he is still only sitting up on his own. He does not pull himself up to stand and has to have a lot of support to stand, but we are hopeful. He is almost 36" and 30 lbs so I still carry him around most of the time, and use a regular stroller when needed. He goes to a regular daycare program and they work with us pretty well. His classmates will move on to the next class when they turn two, but he will not transition any time soon because of the activity level of the next room. When he turns three he can go to the state's preschool program if we choose, and I keep being told if he goes there we will have to have a wheelchair.
AM I BEING SILLY ABOUT THIS?? My son is globally delayed...I get it! But I carried my healthy daughter when she was two and she still uses the stroller from time to time. My son can get from the living room to the kitchen to the toy room as he pleases at home and at daycare he uses his good arm and scoots on his bottom. We have had a gait trainer for months and he tolerates it as well(he uses his better leg to do most of the moving)
I am just curious when did some of you in similar situations decided to get a chair?
My biggest fear is that by ordering a wheelchair I am giving up on him, and running the risk that he could be "stuck" in a chair all day not getting the interaction with his peers that he has now...
If I am being crazy please tell me. I need to pick my battles...I just pulled my son from an inpatient rehab program because they told me he was not drinking and eating enough and they planned on putting in an NG tube. Two weeks to the day my son is back to his normal weight and eating great. I trusted my gut and stood my ground then , but am I making a mistake by waiting on the chair??