Iridescent - posted on 07/03/2010 ( 127 moms have responded )
My daughter has a huge list of health problems. The ones I'm considering for this post include hypotonia, difficulty walking (any distances, but increasingly difficult the further it is, max for her is about 10 minutes walking), and chronic fatigue. She's 3 years old now and 34 pounds, and we've been using a stroller up to this point regularly. Her stroller is worn out though and our wagon was broken by a contractor working on the house, so we're carrying her a lot. She has intoeing (pigeon toed) as well as toe-walking due to short heel cords, which are being treated. She was casted for a full month, both legs/feet, and now she's getting splints. The doctor told us she'd need them for 6 months before a recheck, but in all likelihood she'll need them several years, until she stops growing. She's also getting to where she can't fit in the seats of the shopping carts, either.
She's not paralysed, she can walk. But we can't do a lot of the things we need to without carrying her now the bulk of the time. At what point do people wait before checking into getting a wheelchair for a child like this? There really isn't hope that she's going to improve, so that's not the issue at all. Do we just need to accept it and request it and move on? I feel like we need it, but also like we're taking away from her by even considering it.