weight gain?

Wendy - posted on 11/07/2009 ( 3 moms have responded )

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does anyone have any tips on weight gain for cp kids. my son is 14 and weighs 40 pounds. he is on feeding supplements at night and eats by mouth all day. he has consistently been doing this for 13 years and it has never seemed to help. please let me in on any tricks!

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Kristy - posted on 03/08/2013

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My son Trenton, is almost three and he only weights 22 lbs. He was 16.9 at nine months while I was breast feeding him but, since not much has helped we have tried an Appetite stimulant and he has been on Pedisure since 14 months old, it has 240 calories per 8 oz, and is delivered to our door every month. They even have a pedisure 1.5 that’s 360 cals …. Trenton did not do well with it. He has recently had a G-button/pyloraplasty surgery in late January, things have not gone well, and he has granulation tissue and infection around his site. He started vomiting in October and even now 6 weeks post op he is still vomiting. He is on noctural feeds as well as bolus feeds, he has to high sensory issues to even eat baby food so only pedisure .....

Anette - posted on 01/01/2011

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Our son is almost two and we are continually battling with the smae things. You could try using coconut milk instead of regular meals when cooking, it is a bit different flavour but way more calories. I have also been adviced to add a tbsp of walnut oil in his food to increase the caloric value. We are also adding Fantomalt (Nutricia) to his bottle feedings. It is a neutral flavour but adds 19 calories per spoonful. Hope this helps.

Ceri - posted on 12/11/2010

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Do they not give him supplements with extra carbohydrates in them my son is 2 and half and he has cp but he gets tube fed all the tym and he is currently 25lbs

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