Hypospadias and Epispadias Association

Amanda - posted on 07/13/2010 ( 1 mom has responded )

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http://www.heainfo.org

I'm a member of this support group. There are many men, women and teens that use the free message board. Everyone is very open and honest. They live all over the world and deal with varying degrees of hypospadias, epispadias and bladder exstrophy. They talk about their experiences with these birth defects and surgeries. It's amazing. I honestly don't know what I'd do with out it. Check it out.

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Shannon - posted on 07/13/2010

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Thanks Amanda I will check this out. My daughter is 21 mos born with exstorphy and had a failed surgery.

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