43 year old first time mom with a child who has cortical visual impairment, anyone else out there?

Maggie - posted on 01/17/2010 ( 2 moms have responded )

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Will is 14 months old and has vision impairment and some developmental delays. just wondering if anyone out there has been through this or is in it with us?

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Maggie - posted on 01/21/2010

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Linn,
thanks for the encouragement. We are lucky that we were plugged into early intervention early. He has made great strides. You are so right, it is all up to God, we are just going to make him the best Will he can be.

Linn - posted on 01/18/2010

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aww, hang in there! My son almost died at birth, and we spent many years going to therapies, etc to get him rehabbed from his injuries. If I could give you some advice/encouragement? Take a deep breath and accept this is what God has planned for all of you. Don't waste time wishing or wondering what could have been- b/c that won't change it. go ahead and get yourself educated on her needs, and how you can best meet those needs. Get her involved in an early intervention program. Your county MR/DD board will know where those are.

Commit to helping her aggressively these next few years and you will be giving her the best possible start in life. Get all the therapies and things you can .

My son had a fractured skull, clavicle, and bleeding on the brain from his birth injuries and they thought he was going to die.Then they said he was autistic, too. We were very aggressive in getting treatments for him, did not subscribe to the whole"wait and see" approach. For the next 9 yrs we took him to speech, pt, ot, and other clinics, etc 4-5 days per week. It paid off. Today he is in his jr year of high school, he is in the national honor society, he is taking college courses and when he graduates from H/S, he will also graduate college with an associates in Engineering. He also runs track and cross country. He is a very well behaved sweet young man. Perfect? not quite, but he is the most perfect kid I've even met in my life.

So- YOU take a deep breath, and resolve to do this. You really can help your child to be the best he/she can be.

My prayers are with you!

Linn

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