Any Mothers who have children with a disease?

Christie - posted on 09/27/2009

I can really identify with what I am reading here! My 15 year old son was diagnosed with Learning Differences or better known as the age old mindset of being Learning-(Disabled)! Which is so tragic and frustrating to me, being a child who was also diagnosed as "learning disabled" and dyslexic. But that's a whole nother subject! (o: Anyway, my son also was diagnosed with ADD. When he was much younger we tried some presrciption drugs for the ADD, with the awful side affects, such as Tic's, extreme mood swings, anger, sleeplessness, we opted not... to use medication and I began to investigate and educate myself on the many other options and life style changes that work just as well, or better rather! Then to compound these issuse's My son was hit by a SUV as a pedestrian in January 08! Our lives were then changed forever. ONLY, by Gods amazing GRACE he survived the accedent (praise God)! However, we were left with months of rehab, many surgeries and he will have a life time of managable but annoying health issues. I am SO...not complaining! I HAVE MY CHILD! We are now however, left with the plethera of emotional and mental health issues from such a horrific event in a child's young life. He is experiencing, severe anger, rage and depression... which, disturbingly ends up being projected towards his 9 year old sister. And she just doesn't understand his anger towards her. Although, she is so bright and thinks about it obsessively, trying... her best to help and understand. It's so painful for me to watch and try and make sense of it and intervene and moderate. I myself have a disease and have suffered with battled with severe depression/anxiety and sleep deprivation. And my husband of 17 years "moved on"... this was 2 1/2 years before my son's accident. That alone... destroyed my children world's as they new them! Their father is shut down when it comes to helping the children deal with his actions or any of their emotional issues what so ever. Also he uses them to get to me! In any, and every way he can! So, emotionally I have a full time job just picking up the pieces of his constant...damage to their very incapable understanding minds! Uh, it's SO, hard and SO taxing on my physical and mental health! My daughter suffers with asthma and bad allergies, as does my son now, due to the damage sustained to his lungs in the accident.
However, having said all that, we are quite blessed in many, many ways! And I do not ever want to be a complainer! God is... good! and from him my strength cometh! And if I have taught my children that, than I am pleased.
As I read your stories on here I feel humbled and don't always realize my blessings are many! That also, there are thousands of you Mother's out there... and we can join together and be a much stronger force, much stronger than we may be able to see right now. I may not be able to "see" my inner strength, but I thank God for it. Wish I didn't need it so much at times! (o:
So, I am glad to be here and glad if I can make some friends or be of any tiny help in some way. Blessings to Mothers

Anastasia - posted on 09/27/2009

Its hard my 15 yr old has ADHD, asthma, GERD, migranes, he was just diagnosed with fibromyalgia. He doesnt want to stand out and be different, its a struggle to get him to take his meds , and he misses a lot of school. I've had him in and out of therapy but he just wont talk, right now he is doing okay....just hopping this lasts a while