CHANGE OF LIFE BABY

SHELLE - posted on 02/09/2010 ( 5 moms have responded )

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I had a baby at 37, and she was the joy of my life GOD brought her to me just in time because I felt like I was going into a deep depression, but she brought me back to life I could'nt of been happier. I used to tell her dad all the time I had her for me not for us. I also have 2 other children son's now 23, and 27. My mom calls my baby girl my change of life baby, and that she did. But then I ran into a brick wall i was diagnosed with a incurable disease, that the Dr's don't know anything about. It is said that it takes you all the way back to the baby stage its hereditary my mom had it. I went from having saturday morning manicures and doobies with my baby girl. To not being able to walk to get the mail, and not being able to even go outside by myself, now all the things I have dreamed of doing with my Daughter are just that dreams, and I often think about how long I have before I am totally bed stricken to spend with her doing the small things with her that I can still do. Can anybody help me prepare her for whats to come so she can understand and not be afraid. Looking for support.

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SHELLE - posted on 02/14/2010

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JUST FYI THAT IS MY BABY GIRL BUT THATS NOT ME THAT IS MY BFF WHO MYBABY GIRL IS NAMED AFTER.

SHELLE - posted on 02/14/2010

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hI sWEETIE, i HAVE ALREADY DONE THAT OUR 1ST APPT IS THE 25TH, KEEP YOU UPDATED.

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That is tough ,
I would seek counselling for the Sweet baby of yours, To help Her understand what is Happening to Her Mommy, Otherwise She will be traumatized.Bring people into Her life who You Trust ..People She can depend on and trust to help her in life the way that you would if you were still here .Medical professionals , can help set this up.. I watched this happen , the Mom had breat cancer and Her daughter was 8, counsellors were with tthe little girl all day long..
God Bless all of you .

SHELLE - posted on 02/13/2010

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Thank u so much for your words of wisdom, it gave me something to think about especially by u saying, I stop thinking about what can't do with him and starting thinking of diffrent way to enjoy my time with him. You are right I spend a lot of time feeling angry about my illness, I now relize that, that makes me push her away, I am the baby of 6 girls and 2 boys, and all my life my sisters has always taking care of me, and now I find myself feeling alone because all but 2 of my siblings can't begin to understand the mental pain i am in, the 2 siblings that I speak about have the illness also so they can relate partcially, because they have no younger children. I will pray for you and your son and God Bless

Angela - posted on 02/13/2010

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Girl i feel your pain. I am 45 and in 2005, two years aftr i had my son the Drs. diagnosed me with M.S.( now i am one of the most healthy person on this earth) so you can imagine how devastated i was when i heard that. And then the next year the Drs. discover my son had a Birth Stroke! "My Saving Grace" yes like you i call my second and last son this because i believe i wasn't going the right way in life and i had to be slow down. So there i was with these two major debilitating disease facing me, my son, myself! Who do I take care of first? Should i gave up life of walks in the park etc. with my son? etcetera. At first I did, but when i began to believe in God i saw things different. looking back i can see now that He was preparing me all along I just never paid attention to the signs, but now I do. God has sent many Helping Hands along the way to assist me at this time of my life. And i am grateful for the life I have now, because i am a better person because of what happened and is still happening to my body. and "My Saving Grace" is so very sensitive and intuitive that thinking negative is out o the question. And after the flare up I had last November, i came out o it with a renewed outlook on life, thinking positive has become my mantra. My son understand mommy can go out n play in the hot sun bit by bit i let him know some info bout the two o us condition. I don't think about what i can't do with him I find ways i can do things different with him and i cherish everyday that God is letting me have with him. I know it's rough emotionally but you have to try to think positive and act positive and once you are in that frame of mind you can talk with your daughter.

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