It feels like no one understands....my illness?

Nancy - posted on 11/11/2011

Tracy has a great post. Flylady.net approach is very good. And God will lead you to a path of fulfillment, sometimes it's just not clear to us till we look back and see where we have been and who we have touched. And also, let others help you. Paying forward needs recipients.

Tracy - posted on 11/06/2011

There is always one person that understands and that is our heavenly father. while no-one else can fully understand because no one else has exactly the same issues and challenges that you do, i understand how difficult it can be to have depression and chronic pain. I have had 2 back surgeries and suffer from chronic daily pain and depression due to the pain. I too loved my career but i can't work because of pain. i have learned that it is very important to pace yourself and not overdo working or housework. i follow flylady.net who helps me break down housework into more manageable tasks. i also take a non prescription supplement called Genacol that really helps with my pain. Have you gone to any chronic pain clinics? If you find a really good one, they work with your medications and teach you how to better cope with your pain and things to do to help do tasks with less pain. i have a great, supportive doctor at my pain clinic in minnesota that really helps.

Evelyn - posted on 10/10/2011

I wish I had an answer for you. I am suffering from the exact same thing yet I push myself everyday to hold down a full time job and maintain my home life. People think I am lazy because there are times I have no energy and the pain I feel keeps me from doing simple things. It actually hurts to walk because now I have the muscles in my foot tightening up which is very painful. All I can say is I understand and I feel for you. Keep your head up and keep fighting,,,God Bless...

Kathleen - posted on 10/05/2011

Boy do I hear you......I feel the same way.

Martha - posted on 03/20/2009

No I emailed you all you need to clear up the yeast...and it won't take anytime...check out my email and tell me what you think...good luck, Martha

Christine - posted on 03/19/2009

martha, MRSA is one of the "super bugs" . it is a staph infection that is resistant to the medications that will usually help staph infections.  Methicillin resistant staphylococcus areus is the full name.  i had some swish and swallow nystatin when the abcess was healing---that helped keep the pain from yeast in my mouth and chest at bay.  right now i have diflucan to try and keep it from becoming miserable while on the meds.  if i manage to get this stupid thing cleared up, i will probably have to go on a weeks worth of yeast meds when the antibiotics are done.

christine

Jeanne - posted on 03/18/2009

Quoting Jeanne:

It feels like no one understands....my illness?

I've battling chronic depression + anxiety for over 15 years and now I have Fibromyalgia this major work for me to be a stay home mom, and sick......because I loved my career and working Mom.........my doctor after 2 years wants me to go on disability........I finally agreed, but very difficult to do at my age......they I sort of look at it will say on my tombstone that I was a good career women........God must have a plan for me..........because he put me in this direction for a reason! help or advise?

If I decide to delete how can I stay in contact with those ladies because we are friend & I would like to keep contact! help me...........please

Jeanne - posted on 03/18/2009

Quoting Susan:

hi jeanne yes men do not under stand . i saw yourphotos of your children they are lovely kids i am one of a twin  he lives in canada thats how i got on face book. take care susan

Dear Susan

Men WILL  NEVER UNDERSTAND..........& THEY THINK THIER KING OF CASTLE....but if they all new IT IS US...ha hja ha!

Thank you I'm very pround of them for being a single Mom I think I did a pretty good job ............but one boy twin is ADHD..........& his always a real hand all his life.............it's been about 1 1/2 year that his been giving me lreal trouble..........but that's another big story I wil tell some day..............not to be mean..........just really tired nothing.......sorry but I will tell you & just maybe YOU can help me!

Wow..........your a twin he lives in Canada............amazing...........I have tiwns one boy & one girl and I live in CANADA.................lol.............I'm from Cornwall Ontario Canada! Where in Canada does your brother ilve? Facebook is the incredible web site EVER........you can share so much plus add pictures........it amazing.

Take care & keep in touch! & SENDING YOU ANGEL BLESSINGS

Jeanne

Martha - posted on 03/18/2009

Christine, if I am being nosey then please forgive my questions, but I think I may have something that will help you with at least certain side effects you mentioned. I wasn't very clear on your meds and what you were taking for what, but you mentioned taking Clyndamyacin for MRSA..I don't know what MRSA is, could you explain please? But three rounds of any anti-biotic is going to take out your immune system and yes that much anti-biotics treatment will cause horrid yeast issues.

I have a product that is ALL NATURAL that will clear up any form of yeast or skin irritation and could be of great benefit to you while you are on the anti-biotics. You can email me at mb72666@yahoo.com and put in the message RE: Yeast cure, and I will tell you what can help clear that up very quickly.

Hope you feel better soon, Martha Brown

Martha - posted on 03/18/2009

Quoting Christine:

besides pain meds and muscle relaxants, i also take a stimulant---after 40 they decided i was ADD--could just be the scattered brain of fibro--BUT--it certainly gives me a bit more energy than i used to have---but it still can't carry me through the day.  i also take pristiq and clonazepam and armour thyroid--not sure why i'm taking that one.   i also have to take a PPI for severe reflux.

right now i am also taking bactrim and clyndamycin trying to get rid of a stubborn case of MRSA---on my face, no less.  i'm on my 3rd round of antibiotics, but at least there is no abcess anymore---but it sure gives you yeast problems!!!!

christine

Susan - posted on 03/18/2009

hi jeanne yes men do not under stand . i saw yourphotos of your children they are lovely kids i am one of a twin  he lives in canada thats how i got on face book. take care susan

Robynn - posted on 03/17/2009

I do not take a lot of pain medication now. I go to Cleveland Clinic on a regular basis. It is like a small heaven here on earth. They have a department where pain is the diagnosis. No matter why, they treat your pain. I have cervical facet blocks on a regular basis. I also receive the local muscle relaxing medications when I get to tight. I was on Lyrica, which was like a miracle in a bottle for me but I had to go back off because I suffered from some side effects. I will not hesitate to try lyrica again at some point if I need to. I had to quit my job. I am back at school but I miss a loy of days. I have good people all around me in my life. I take two anti depresssants that help a lot. I try to remember that GOD is good.

Christine - posted on 03/16/2009

besides pain meds and muscle relaxants, i also take a stimulant---after 40 they decided i was ADD--could just be the scattered brain of fibro--BUT--it certainly gives me a bit more energy than i used to have---but it still can't carry me through the day.  i also take pristiq and clonazepam and armour thyroid--not sure why i'm taking that one.   i also have to take a PPI for severe reflux.

right now i am also taking bactrim and clyndamycin trying to get rid of a stubborn case of MRSA---on my face, no less.  i'm on my 3rd round of antibiotics, but at least there is no abcess anymore---but it sure gives you yeast problems!!!!

christine

Jeanne - posted on 03/16/2009

Quoting Leigh:

You don't say what age you are. There is a plan for all of us. We just have to listen to our body and heart and decide what we can and ca't do. I am 53 and have been on disability since 2001. Starting in 97 I have had a heart attack, deep vein thrombosis, pulmonary embolism, stroke, shattered ankle, cracked knee, and was told I had fibro but now I am doubting it. I recently had a vein replace in my leg (Dec) and it is taking it's own sweet time healing. I, too suffered from deep depression for years but was fortunate to find that Cymbalta was a real help. I was able to turn my thinking around, partly because I realized how incredibly fortunate I am to be alive. This sounds like a simple thing I know, but I somehow was able to dig deep inside and pull myself to a better place. You have to be able to hear your own heart. I can't tell you how to do it but you must be able to find some place to be alone and quiet. It doesn't come fast or easy. This is probably not any help but if it could happen to me then there is hope. It took a lot of crying and being pissed off, but I am much calmer and more at peace with myself that I have ever been. You have to learn what is important to you.

If you have the power within yourself..............excellent grate for you...........but when you have chronic depression + anxiety + fibro...........yes we can be positive at times..............mainly day to day is a struggle.........little walks.........yogo...........making my bed..........getting dress..........washing yourself is a every day struggle...................

Excellent.............good for you if  can turn your own life around that's great!

Take care! Jeanne

Leigh - posted on 03/16/2009

You don't say what age you are. There is a plan for all of us. We just have to listen to our body and heart and decide what we can and ca't do. I am 53 and have been on disability since 2001. Starting in 97 I have had a heart attack, deep vein thrombosis, pulmonary embolism, stroke, shattered ankle, cracked knee, and was told I had fibro but now I am doubting it. I recently had a vein replace in my leg (Dec) and it is taking it's own sweet time healing. I, too suffered from deep depression for years but was fortunate to find that Cymbalta was a real help. I was able to turn my thinking around, partly because I realized how incredibly fortunate I am to be alive. This sounds like a simple thing I know, but I somehow was able to dig deep inside and pull myself to a better place. You have to be able to hear your own heart. I can't tell you how to do it but you must be able to find some place to be alone and quiet. It doesn't come fast or easy. This is probably not any help but if it could happen to me then there is hope. It took a lot of crying and being pissed off, but I am much calmer and more at peace with myself that I have ever been. You have to learn what is important to you.

Jeanne - posted on 03/16/2009

Quoting Susan:

hi  my husband not much help all he wanted is for me to go to work  when i am in pain no chance. i used to pay the mortgage now i cannot  work now so i had to do a lot of claiming its been so stressfull. hes not easy to live with . i still got my mom she 92 years in june  . i got a grandson from my youngest but never see him . o well thats life. its nice to be in your group take care susan

Thans again Susan that must be hard for you being that you worked & used to pay mortgage because not working and dealing with all that PAIN. Plus all that stupid claims/forms doctor's papers that just totally were me out.................I find it so so draining.........your/we are sick for me this makes me sicker more stressfull. Wow...........you still have your Mom & she's 92yrs your lucky to still have your mom with you........

Sorry his not the easy to live with................I think men just totally don't understand..............

Thankfull for our group!

Take care & keep in touch!

Jeanne

Susan - posted on 03/16/2009

hi  my husband not much help all he wanted is for me to go to work  when i am in pain no chance. i used to pay the mortgage now i cannot  work now so i had to do a lot of claiming its been so stressfull. hes not easy to live with . i still got my mom she 92 years in june  . i got a grandson from my youngest but never see him . o well thats life. its nice to be in your group take care susan

Jeanne - posted on 03/16/2009

Quoting Susan:

hi jeanne thanks for message  i got 2 boys 32 and 29 i dont see them now igot a 2nd husband i live in birmingham uk .i dont hear from  my boys they dont care. take care susan

It my pleasure Susan us girls got to stick together........sorry to hear that you have 2 boys that you don't hear from them and they don't care..............that's really sad..............Let me tell you those boys of yours that don't bother with YOU............someday........THEY WILL BE VERY SORRY not having there own Mom in their life, and they will have regrets..........

At least you have your 2nd husband and you live in Birmingham UK we have your honey to share you life with! Does he understand your illness?

Thanks for your note Susan! You take care & let's all keep in touch! We do need each other and we all understand our illness.

Jeanne

Jeanne - posted on 03/16/2009

Quoting Carol:

Hi, I too have Fibromyalgia and depression and went on disability 2 years ago. It took me 2 tries but I finally got accepted. I think it was more because of my depression and anxiety and the fact that I no longer like to interact socially. I have gained a lot of weight and went from being underweight to overweight and am very self-conscious about this. Because I do not like to be with people staying home has not been difficult for me. I still do enjoy being with my family but they all live away from me so I do get lonely because of this. No one really understands Fibro unless they have it and that is what makes living with it so difficult (I was diagnosed in 1987). I wish you all the best and if you are trying for disability just know that it is possible to get it.

Thanks Carol and welcome to older 40yrs old mums.....we all in the same boat with Fibro + depression + anxiety and all that fun stuff that we all live each and everyday..........plus the fun of weight because of all the medication we take.........plus we cannot over exercise because the pain so much more..........and what happeneds if we do to much work or exercise then I'm dead for at least 3 to 4 days in major PAIN..............I push family away because they just simply do not understand .no matter what.............

I'm looking forward for my disability................a hole lot less worry about...........we have enough on our plate..........

Take care & keep in touch!

Carol - posted on 03/16/2009

Hi, I too have Fibromyalgia and depression and went on disability 2 years ago. It took me 2 tries but I finally got accepted. I think it was more because of my depression and anxiety and the fact that I no longer like to interact socially. I have gained a lot of weight and went from being underweight to overweight and am very self-conscious about this. Because I do not like to be with people staying home has not been difficult for me. I still do enjoy being with my family but they all live away from me so I do get lonely because of this. No one really understands Fibro unless they have it and that is what makes living with it so difficult (I was diagnosed in 1987). I wish you all the best and if you are trying for disability just know that it is possible to get it.

Susan - posted on 03/16/2009

hi jeanne thanks for message  i got 2 boys 32 and 29 i dont see them now igot a 2nd husband i live in birmingham uk .i dont hear from  my boys they dont care. take care susan

Jeanne - posted on 03/16/2009

Quoting Susan:

hi jeanni i think we all got the same in common i can get lonely  i have 6 cats they give me so much love i do not know what i would  if i did not have them they help stress.  susan

Thanks for your special thoughts Susan.............yes we have same in common..............I get lonely two.........even though we are four in house.............Your six cats give you the best medicine........no doctor can bet that one...........I totally understand because I have a dog he is "Hope" she's a little thing she was 1 yr old on dec 12th she's a Chitsou & part Terrier..........she fullfills my life when all the kids are gone.............wow...........it's just amazing what a animal can do! They are a great stress reliever...........or they keep up sane I like that one better.

Do you have any children? Where do you live?

Let's keep this cicrle of women going! Take care & keep in touch! and if your having a hard day and need some to talk too come here and if nobody on YOU can email me anytime jstang25@cogeco.ca.

SENDING YOU ANGEL BLESSINGS!

THANKS AGAIN! :)

Jeanne

Jeanne - posted on 03/16/2009

Quoting Dawn:

I know that it is possible to get on disability for Fibromyalgia alone because I just had a friend who recently did so I want to leave that word of encouragement with you.

I also know how it is to be out of the work field due to health issues. I had to quit my job years ago. I am disabled due to a serious accident I had when I was a teenager. I worked as long as I could. I am on disability now and that alone gets me down sometimes. I loved that I could finally be a Stay At Home Mom and have more time with my kids but now they are getting older, becoming more independent, and I'm feeling more and more useless. That's why I enjoy sites like this to share and hopefully encourage others because I totally agree with what you said, God has a reason. I've had the chance, just online to help and encourage others because of my own problems. We need each other. I hope it helps, in some small way,  just to let you know today you are not alone. Hang in there! God Bless

Thanks Dawn for sharing your true life experiences with all of use...............and yes that's right we do need each other to share our experience with each other and this is our way of helping and we are growing together.................We do understand...........our illness because we live each and everyday of our life................

We are a great bunch here and we all need each other, because the outside world does NOT know what we FACE everyday of our life.

The hardies part is my family saying YOU don't do nothing all day...........You can do it?..............oowwwww NO that's why I'm NOT WORKING.............and for a doctor that puts YOU as disable..................IT IS FOR A REASON.....................HELLO................is any body listen when I speak.......so so hard. To be home & NOT able to do your own things in your house..............THAT'S TOUGH...............

Dawn I found super hard one as well................that the kids are growing up and they in & out..........that's right THEY DON'T NEED USE / OR NOT MUCH.....................this is a tuff one for me as well...............

Not working is tough on me as well, because everything is still new to me...............it's only been since July 22nd, 2008 for me........................waiting to here from disability...............keeping my fingers cross...............I could not bear it........we won't go there yet!

We will definally stay in touch! We need each other! We stand together!

SENDING EVERYONE ANGEL BLESSINGS

Jeanne

Jeanne - posted on 03/16/2009

Quoting Martha:

Hi Jeanne and everyone who has posted. I wanted to get back in touch with this group specifically because we do have so much in common and I truly do believe we all where we are for a reason. Maybe that reason is to share all the diferent techniques and processes we've been through and compare notes that might help each one of us as we go forward being our own patient advocate.

I wanted to update you all on my situation (maybe it will help some of you). I just met my new team of drs. this past week. After reviewing my long health history with this group they told me they have a very comprehensive pain management program that uses multiple theories and work you in and out of the water right off the bat. This scared me since I have not so far been able to do anything movement outside of the water, but when I mentioned this what they said was so common sense. They said we know you are scare of how bad the pain will be, but what we've found is that if a person doesn't "learn" to work through the pain during the dry PT then they will only progress to a certain point and then go no further. I should have known this...I studies PT in school, and I KNOW the brain must learn to overcome and deal with (through techniques)the pain otherwise I won't be able to handle dry pain everyday things, which is what most of us are doing. I don't load my dishwasher while standing in a pool where zero gravity  keeps me from having as much pain, so I know this is my test, to see if I will doo ALL I can for my body while it's available, because my feeling is, this program is being offered to me as gift by the Lord to see if I will do my part and if I will then he will help me. I also feel this may be my last chance at a gift/program like this. So even though I KNOW I will be in excrutiating pain and it will take it's toll on me to a point I believe the benefits out way the negatives. I used to be able to meditate and do Tai Chi, and I've lost that ability to concentrate to the level I did in meditation as well as range of movement from Tai Chi, so I really do feel at my age with my body in the shape it is, this is my chance. Please keep me in your prayers so that I may be able to complete this 5 week 3/wk program and come out on the other end stronger and go on and continue it after and continue to get stronger for my daughter.

I hope you all will be able to find something similar if you haven't already to help you all with your health issues. I have been researching Pilates and will probably use that program after this 5 wk PT program is over so I won't return to the same issues.

Again good luck, and you all are in my prayers. Thanks, Martha 

Thanks again Martha.................i/we are SENDING YOU ANGEL BLESSINGS...........you go gril...........we will pray for you & your little precious one.................

Keep it touch! We be watching.............for your little notes................that mean the world for all of use.........keep your up & high.........and show them. I YOU don't try you will never know.............must try..........

Good Luck! "One step at the time " I call taking baby steps" because that all I can do...

Jeanne

Susan - posted on 03/16/2009

hi jeanni i think we all got the same in common i can get lonely  i have 6 cats they give me so much love i do not know what i would  if i did not have them they help stress.  susan

Dawn - posted on 03/15/2009

I know that it is possible to get on disability for Fibromyalgia alone because I just had a friend who recently did so I want to leave that word of encouragement with you.

I also know how it is to be out of the work field due to health issues. I had to quit my job years ago. I am disabled due to a serious accident I had when I was a teenager. I worked as long as I could. I am on disability now and that alone gets me down sometimes. I loved that I could finally be a Stay At Home Mom and have more time with my kids but now they are getting older, becoming more independent, and I'm feeling more and more useless. That's why I enjoy sites like this to share and hopefully encourage others because I totally agree with what you said, God has a reason. I've had the chance, just online to help and encourage others because of my own problems. We need each other. I hope it helps, in some small way,  just to let you know today you are not alone. Hang in there! God Bless

Jeanne - posted on 03/15/2009

Quoting Christine:

jeanne, i've been fighting depression and anxiety for about 20 years.  i battled anxiety when i was 11---and when it wasn't something well-understood in kids.  i've also had some OCD since the 3rd grade---but my kids and i really get laughing about OCD, because it can be pretty funny if it is not disrupting your life terribly.  i also have fibromyalgia.  i am the drug queen at our house---but they're all legal.  i don't know how i would survive without pain meds.  some days, when the weather/air pressure is changing, i have a really hard time getting my pain under control. 

.  i feel bad that i don't have the energy i feel like i need to take care of my family.  i am 46 and had my last baby when i was 40.  we have 11 children and 2 grandkids and i just don't feel like a very good mother any more.  i keep thinking that i can make the pain get better-----not sure if this is wishful thinking or optimistic thinking.

Thanks a Million Christine someone finally understands me.................................WOW.............................. I feel the same way you do...........that I could not survive without PAIN MEDS.............I feel like a drug store and the pills does NOT relieve the PAIN...........go figure...........we should be the dr's........there just guessing and we are the test dummies..........lol........

And your last baby at 40yrs..............your amazing women / Mother.............11 children 2 grandkids.........your bringing memories of my past because my Mother had 11 children and was her last baby out of 11 their 20yrs difference between me & the older's...........cool..............we have a lot in common....................

Just recently my doctor is trying to get me on a disability. Since July 22 2008 was my last day worked as a career mom. I was battling chronic depression + anxiety for over 15 years and now I have Fibromyalgia wow this major work for me to be a stay home mom, and sick......

SENDING YOU ANGEL BLESSINGS

Take care & please keep in touch!

Jeanne

Jeanne - posted on 03/15/2009

Quoting Robynn:

Hi Jeanne, My heart is with you. About 3 and a half years ago a young girl ran a stop sign and t-boned my small car. My life and the life of my son changed dramatically. He has chronic back and neck problems to the extent that he cannot sleep at night. I haveneck, back ,left hip, arm, leg problems. I am now diagnosed with post dramatic fibromyalgia. And post traumatic stress syndrome. My nine year old has a back injury that gives her trouble but does not seem to stop her. She has problems aftrwards. I have a baby that turns two today. she was a surprise after the accident. I spent a good part of the pregnancy in bed because I could not take medicine and so I was in a lot of pain. I had to quit my job.I understand you. I will pray for you.

Wow...........my heart goes out to YOU! You are here on this earth because was not your time, YOU did not go to heaven because you still have to teach your little one too take care of...................YOUR ARE AN ANGEL SENT BY GOD ( not trying to put religion in BUT it's TRUE.............and I'm priviledge to speak with you today!

Plus all that chronic PAIN........................I hope you have good PAIN medication? Plus worried about your nine year old as well...............That must extremely hard pregnancy in bed and now sharing with your baby is turning two today.........Happy 2nd, Birthday sweetie...........I hope have some kind of support around you1

Please take care & keep in touch! Jeane

Christine - posted on 03/15/2009

jeanne, i've been fighting depression and anxiety for about 20 years.  i battled anxiety when i was 11---and when it wasn't something well-understood in kids.  i've also had some OCD since the 3rd grade---but my kids and i really get laughing about OCD, because it can be pretty funny if it is not disrupting your life terribly.  i also have fibromyalgia.  i am the drug queen at our house---but they're all legal.  i don't know how i would survive without pain meds.  some days, when the weather/air pressure is changing, i have a really hard time getting my pain under control. 

.  i feel bad that i don't have the energy i feel like i need to take care of my family.  i am 46 and had my last baby when i was 40.  we have 11 children and 2 grandkids and i just don't feel like a very good mother any more.  i keep thinking that i can make the pain get better-----not sure if this is wishful thinking or optimistic thinking.

Mary - posted on 03/15/2009

bless ya tex me on 07846146197.we have a chat

Martha - posted on 03/15/2009

Hi Jeanne and everyone who has posted. I wanted to get back in touch with this group specifically because we do have so much in common and I truly do believe we all where we are for a reason. Maybe that reason is to share all the diferent techniques and processes we've been through and compare notes that might help each one of us as we go forward being our own patient advocate.

I wanted to update you all on my situation (maybe it will help some of you). I just met my new team of drs. this past week. After reviewing my long health history with this group they told me they have a very comprehensive pain management program that uses multiple theories and work you in and out of the water right off the bat. This scared me since I have not so far been able to do anything movement outside of the water, but when I mentioned this what they said was so common sense. They said we know you are scare of how bad the pain will be, but what we've found is that if a person doesn't "learn" to work through the pain during the dry PT then they will only progress to a certain point and then go no further. I should have known this...I studies PT in school, and I KNOW the brain must learn to overcome and deal with (through techniques)the pain otherwise I won't be able to handle dry pain everyday things, which is what most of us are doing. I don't load my dishwasher while standing in a pool where zero gravity  keeps me from having as much pain, so I know this is my test, to see if I will doo ALL I can for my body while it's available, because my feeling is, this program is being offered to me as gift by the Lord to see if I will do my part and if I will then he will help me. I also feel this may be my last chance at a gift/program like this. So even though I KNOW I will be in excrutiating pain and it will take it's toll on me to a point I believe the benefits out way the negatives. I used to be able to meditate and do Tai Chi, and I've lost that ability to concentrate to the level I did in meditation as well as range of movement from Tai Chi, so I really do feel at my age with my body in the shape it is, this is my chance. Please keep me in your prayers so that I may be able to complete this 5 week 3/wk program and come out on the other end stronger and go on and continue it after and continue to get stronger for my daughter.

I hope you all will be able to find something similar if you haven't already to help you all with your health issues. I have been researching Pilates and will probably use that program after this 5 wk PT program is over so I won't return to the same issues.

Again good luck, and you all are in my prayers. Thanks, Martha 

Theresa - posted on 03/15/2009

Hi Jeanne, I also have Fibromyalgia , along with Hypothyroidism, Premature Menopause and allergies.  I have found that weight taining helps alot with the Fibromalgia. 

Robynn - posted on 03/15/2009

Hi Jeanne, My heart is with you. About 3 and a half years ago a young girl ran a stop sign and t-boned my small car. My life and the life of my son changed dramatically. He has chronic back and neck problems to the extent that he cannot sleep at night. I haveneck, back ,left hip, arm, leg problems. I am now diagnosed with post dramatic fibromyalgia. And post traumatic stress syndrome. My nine year old has a back injury that gives her trouble but does not seem to stop her. She has problems aftrwards. I have a baby that turns two today. she was a surprise after the accident. I spent a good part of the pregnancy in bed because I could not take medicine and so I was in a lot of pain. I had to quit my job.I understand you. I will pray for you.

Susan - posted on 03/15/2009

hi sounds to me you had it bad having your baby must be hard. i did not know about fibromyalgia  never heard of it i live in uk all i know is the doctors are sending me to a pain relief clinic. i have checked on the web about it . it sounds alot like what i am suffering take care susan

Martha - posted on 03/14/2009

Please stay in touch, I also can not get on line for days. I give all the glory, praise and honor to our Christ. Lord we are so bless to have others you put in our lives. I pray for understanding and support from family and friends. I pray for the most precious gift you have given us, our Salvation thru the blood of your son, knowing one day we will be free of pain, living forever in your present. Forgive us our sin of inpatient and self pity. these I ask in the name of Christ Amen

Jeanne - posted on 03/14/2009

........God must have a plan for me..........because he put me in this direction for a reason!

Jeanne

Martha - posted on 03/14/2009

God will see you throught. I can understand where you are coming from.. My children are grown married and live at 2 hrs from us. I was working and active till car wreck, on disability also. I feel as I can not do what God has planned for my life, I believe I have not given God the time for his plan. I also get very low and unworthy. I have to remind myself of people in greater need, we have our Lord, who we know it always there. Many people are not saved by the blood of Christ. They are truly lost and have no power greater than themself to turn to. I hope this help, love in Christ. Martha

Jeanne - posted on 03/14/2009

Quoting Martha:

I'm in the very same boat. I was diagnosed while pregnant at 39 with 2 herniated disc' then with Fibromyalgia, Osteo-Arthritis and early stages of Lupus this year. i usually work from home, own my own business, but haven't been able to work since last June, so I also have to go on disability. It's hard and very depressing. I was not supposed to have children then surprisingly became pregnant and my whole world turned upside down. I was very happy but just stunned at what to do...it took me a long time to even get excited about being pregnant because Iwas told for so long it would never happen. Now I'm very sick and have been almost since she was born and I feel terribly guilty about not being kind of mom I thought I would be or wanted to be. I agree there must be areason for what we are going through, I wish luck and prayers, from one who understands. M. Brown 

Thank you so much Martha for sharing your most inner personnal feelings.........this also good therapy for us.

Nomatter what happeneds we must stick together just to keep each other going everyday or every 2nd because sometime I'm even to tired to go on the computer & I love the comptur..........so when this happeneds it's a couple days in bed.

Martha you had your daughter for a reason..........our higher power never gives us anything if he thought we could not handle..........even it's difficult for use.

Look at me: I have 3 children my older son Sylvain is 19 years old with Twins Matthieu (ADHD) & Natalie will turning 17 years old on the 3rd of March.  Matthieu with ADHD if run all my life for these child he has a learning disability plus he very upper sometimes his like 10 kids...........

The grass is greener on the other side as the saying goes..........

Hope we can stay in touch you've got a lot in common!

Jeanne

Jeanne - posted on 03/14/2009

Quoting Susan:

hi jeanne i know what you are feeling i suffer with stress and its getting worse. i been off work since april 2008 with abad hip and leg i fell over on my hip have to use a walking stick to get about i have at last got my dislibity allowance i have arthritis i had to giv e my job in..i am sick of forms to fill in. i am 54 years old  i hope things get better susan

Thank you Susan your sharing your inner deep thoughts I really do appricaite you for taking time out of your day for me to write this note.

Take care & keep in touch!

Jeanne

Martha - posted on 03/14/2009

I'm in the very same boat. I was diagnosed while pregnant at 39 with 2 herniated disc' then with Fibromyalgia, Osteo-Arthritis and early stages of Lupus this year. i usually work from home, own my own business, but haven't been able to work since last June, so I also have to go on disability. It's hard and very depressing. I was not supposed to have children then surprisingly became pregnant and my whole world turned upside down. I was very happy but just stunned at what to do...it took me a long time to even get excited about being pregnant because Iwas told for so long it would never happen. Now I'm very sick and have been almost since she was born and I feel terribly guilty about not being kind of mom I thought I would be or wanted to be. I agree there must be areason for what we are going through, I wish luck and prayers, from one who understands. M. Brown 

Susan - posted on 03/14/2009

hi jeanne i know what you are feeling i suffer with stress and its getting worse. i been off work since april 2008 with abad hip and leg i fell over on my hip have to use a walking stick to get about i have at last got my dislibity allowance i have arthritis i had to giv e my job in..i am sick of forms to fill in. i am 54 years old  i hope things get better susan

Jeanne - posted on 03/07/2009

Thanks for sharing.............million thanks!

Jeanne

Jeanne - posted on 03/07/2009

Thanks a Million! I will mostly keep your email so we can stay in touch!

Sending you angel blessings!

Jeanne

Jeanne - posted on 03/07/2009

Thanks A Million! I'm slowly getting personnal help for myself...........I've been home since July 22 2008.............trying find out were I belong.........it's very hard being a stay home Mom when you've had a career for so long.............

One day @ the time!

Jeanne

Paula - posted on 03/07/2009

Quoting Jeanne:

It feels like no one understands....my illness?

I've battling chronic depression + anxiety for over 15 years and now I have Fibromyalgia this major work for me to be a stay home mom, and sick......because I loved my career and working Mom.........my doctor after 2 years wants me to go on disability........I finally agreed, but very difficult to do at my age......they I sort of look at it will say on my tombstone that I was a good career women........God must have a plan for me..........because he put me in this direction for a reason! help or advise?

Hi Jeanne,

      My name is Paula. Ialso suffer from fibromyalgia and some depression,but also have severe RA. I had to go on disability also after 35 yrs of being a hairdresser. I loved my work very much and miss all my clients.I just keep on going as much as I can. my daughter somedays has to help me walk and will sit with me when to pain is bad.She is my world.If you ever need someone to talk to,my e-mail is ptinkle57@yahoo.com. ONE DAY AT A TIME.

i HOPE YOU FEEL BETTER SOON

Paula

Karen - posted on 03/06/2009

Hello Jeanne,  I, too, have suffered with chronic depression for many years and this is what I would like to respond to re: your query.  I finally found someone who listened and helped with things I had suppressed for years...gang rape at 13 ( I am now 62) and another problem not for publication at the moment.  When I confronted my feelings about these things a load was taken off my shoulders.  If you are able to, try to find a counsellor you are happy with and maybe you can get some respite from the depression at least.  Then the others things you have to deal with may become easier, too.  I hope this helps.   Kind regards, Karen

Jeanne - posted on 03/06/2009

Quoting Carol:

Hi Jeanne , If you would like to email me at cmcarr@nb.sympatico.ca I may be able to offer you a solution .

Take Care

Carol

 

 

I'm trying to e-mail you but for some computer reason it is not working when I needed most! so so soryy, but could you try e-mail me

jstang25@cogeco.ca

Thanks

Jeanne

Carol - posted on 03/06/2009

Hi Jeanne , If you would like to email me at cmcarr@nb.sympatico.ca I may be able to offer you a solution .

Take Care

Carol

Jeanne - posted on 03/05/2009

Quoting Paulette:

Hi Jeanne, I totally understand where you are coming from. I have tried to go on disability for my Fibromyalgia and 3 other conditions. I did not get it. Even when they brought in a career counselor, their expert, he said I was disabled. So be prepared for a fight. The best things you can do for your health is to work on tweeking you diet--making sure it is the best it can be. Get allergy testing for enviromental and food allergies, because these things can affect the moods and emotions we have. Have you researched fibro.? Stress aggrevates this condtion. As for chronic depression, what I am suggesting is to come to terms with the things you find so disheartening, then you will find some inner peace of mind. If you learn more about your conditions it will enlighten you as to why you feel some of the ways you do. It helped me a lot. With having fibro. it is a connective tissue disorder which stems from arthritis. Check it out at the website: www.arthritis.org and use the search box for fibromyalgia. I think as far as career wise what did you do for a living? Could you do something from home now and at your hours? I hope this helps some and have a nice evening. Take care.

Thanks A Million! I have educatied myself so much website plus books...........Thanks for taking out your time for me the information already have done. But I will check out arthitis........

Jeanne

Paulette - posted on 03/05/2009

Hi Jeanne, I totally understand where you are coming from. I have tried to go on disability for my Fibromyalgia and 3 other conditions. I did not get it. Even when they brought in a career counselor, their expert, he said I was disabled. So be prepared for a fight. The best things you can do for your health is to work on tweeking you diet--making sure it is the best it can be. Get allergy testing for enviromental and food allergies, because these things can affect the moods and emotions we have. Have you researched fibro.? Stress aggrevates this condtion. As for chronic depression, what I am suggesting is to come to terms with the things you find so disheartening, then you will find some inner peace of mind. If you learn more about your conditions it will enlighten you as to why you feel some of the ways you do. It helped me a lot. With having fibro. it is a connective tissue disorder which stems from arthritis. Check it out at the website: www.arthritis.org and use the search box for fibromyalgia. I think as far as career wise what did you do for a living? Could you do something from home now and at your hours? I hope this helps some and have a nice evening. Take care.