mums with children who have neurofibromatosis types 1 and 2

this group is for parents or even grandparents or guardians of children with nf1 and nf 2.I welcome anyone to join even if this may not effect you but you want to understand about this condition.Its heridtary but also can happen through spontanouse genetic mutations.



Hi Everyone...Thank you for the great welcome...My son is 29 and he was diagnosed with NF2 when he was 12. He has had 15 surgeries and Gamma Knife. Nearly 5 yrs ago his NF took...