MOST HELPFUL POSTS
Abi - posted on 04/07/2010
My 3-yr old has mild CP and just got her first botox injections 4 weeks ago...AMAZING results. Like nothing else! She is walking everywhere....even without AFOs she can take several steps. Our dr....used a sonogram to pinpoint exact locations needed....we had it done in OR with anesthesia so the experience wasn't very traumatic for her. She now can't wait to go back and see the doctor who put "medicine" in her legs so she can walk. So much better than surgery! Of course, this is our first time, and I don't know the residual effects after it wears off, but is surely is worth it for us!
Lori - posted on 05/30/2010
My 8 year old daughter has had Botox injections every 3-6 months since she was a year old. They have worked really well for her. She can get so stiff it becomes very difficult to dress and diaper her. As for her suffering while they are being administered, her neurologist gives her a mild sedative that wears off in about 45 minutes to an hour and she doesn't remember a thing. There have been no residual effects for her as they wear off, but as we all know what works for one child may not work for another. I think you should do what you feel is right for you son. I have learned through the years to trust your instincts, no one knows your child as well as you.
Jenn - posted on 05/17/2010
My son gets botox injections every 3 months and has for the past year. It has been amazing for him! He is able to use his legs more and will hopefully be able to learn to walk when we had little hope of that before! They put him out for it so he really doesnt feel any pain, just a little soreness when he wakes up and by the next day is right back to normal. Without the botox they were going to have to cut the muscles and this for us was a way better option and has had better results then I hoped for.
We did Botox for about a year with my son. We had mixed results, depending on the area that was injected. Wonderful results with injections in the lower extremeties, we could finally change his diapers and get him dressed with out him screaming because it hurt so bad. With the upper extremeties, he did well with injections in the shoulders, not so well with injections into his hands around the thumb. Not sure why, other than the possibility that he is contracturing in his wrists and hands. If you have someone who is very good at what they do, and extremely aware of how the Botox is stored and administered, then I would say go for it. It does work, but it doesn't work miracles! Good luck!
Michelle - posted on 04/22/2010
I agree with Autumn about seeing your child in pain. I am not going to lie. It really hurt him. To the point that he almost had my husband in tears seeing him get th needles. With that said we are seeing a great improvement and now I just have to decide if we keep up with treatment. If it will help him in the long run I will have to work through it. He is only 3 so he doesn't understand why I am letting people hurt him. We were not offered a sonogram to pinpoint the site and he was awake the entire time.
Good luck and my only advice it learn as much as you can and make the decision that is best for you and your child
Autumn - posted on 04/15/2010
hey! My son has undergone botox injections twice now. My son was in constant pain because of how tight his muscles had become and with 2 days of getting the injections his muscles lossened up and I could put on his AFO's again which I hadnt been able to for months! he's been a really happy kid since then. It's been almost 6 months and its just starting to wear off now.
The only thing I don't like about the injections is the process of getting them. It hurts them and its hard to see your kid in pain but when you see how much improvement they make after getting the injections it makes it all worth while!
If you have any questions just ask!
Paula - posted on 04/07/2010
LOVE IT shes not too happy at the time of procedure but after a day she looks at me and says ok ya it hurt but your right it feels better she doesn't like to admit I can be right lolshe gets it in hamstrings and adductors normally we cant get a diaper between her legs but with botox its no problem to do it so deffinatly a bonus to getting it done
Jill - posted on 04/04/2010
thankyou for your reply we found out the other day that we cant let him go in his standing frame or pacer until we seen a orthapedic surgen so at the moment we dont know which route they will take they have even mentoned about medication for lewis so we dont know what the out come will be weather they will operate or not any advice on other route they could take thankyou jill x
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