my daughter has cp

Sophie - posted on 02/08/2009

hi im sophie,

i am 16years of age and my daughter has CP,

she is coming up to 8months and cant roll over sit up unsupported she also dosnt smile.

she had a VERY difficult birth and almost every miniute of the day i blame my self for her difficulties!

xxx

Shana - posted on 02/03/2009

It's so hard not to feel guilty at times but you have to know that its not your fault and that you have to keep moving forward for your child. We just have to make sure that they are happy and that they will be the best they can be. My son Ethan will be 4 in April and he is so happy and so determined to do his best that I can't help but be his cheerleader.....and Aleesha really put the nail on the head with her story, it was very inspiring. I believe Ethan has a gaurdian angel as well, I haven't seen him but I know that he has. :)

Eliabeth - posted on 01/29/2009

Hi Tricia, i know exactly how you feel, i suffer terrible feelings of guilt that i 'failed' my son Adam as he was born at 25wks gestation, and i also feel it is my job and mine only to take care of him, as it was me who refused to switch off his life support when we were told we should.

Adam has Quadraplegic Cerabal Palsy, physically he is like a 4-6wk baby, he can not hold up his head, he has no trunk strength, and has no real use or control of his limbs, (except to kick me when i'm changing or dressing him, lol) and has no communication except body language and me guessing!

He can't use his hands to grip, but can use hid nose and mouth to press a toy if he's laid on his playmat,he will be my forever baby.

But he is the happiest most content little boy in the world, he knows his life as it is, it's just me who knows how it could have been.

Nicole - posted on 01/25/2009

I am sorry that u feel that way. I too at times feel guilty but for a different reason. I was able to carry my child full term and had a pretty healthy and normal pregnancy and my son was fine until 6 months old. After 6 months of age it has been a roller coaster with specialish therapist and a team of special people. I think that it is ok to get thru those stages of grief in this case. And take your time, but just remember god blessed you with a special child for a good reason and that he knows that no matter what you are strong enough to get thru each phase. Keep your chin up and know that I am here if you want to talk.

Karin - posted on 01/24/2009

Quoting Aleesha:

Hi I want you to know that it is not your fault that she has cp! I too felt like it was my fault that my son has cp because I felt the same as you it was my body that gave up carrying him I was 29 weeks when I had him. But I know that God gave me my son for a reason! God gave you that little girl because he thinks your special and he felt that you would do a great job raising her no matter what! I had given up hope that Bryce would ever walk he was 3 year's old and I had was having a hard time coming to term's that he had CP and that he would never walk then I lost my hope! Then one day my husband and I were at a mall in NC and this little old lady was behind us we were letting Bryce walk by holding mine and my husband's hands I saw the lady walking closly behind us and said oh I'm sorry go ahead and she said no I'm fine! Then something kept telling me to talk to her about Bryce so I did. She smiled real big at me and said Jesus will take care of him and thats all she said then she stopped walking we went on to the car and I kept turning around to look at her because I had this feeling that I to this day can not explain and she wasnt there she was gone there was no car's going by so nobody could have picked her up and she didnt have time to get to her car or back to the mall entrance she was just gone! I had cold chills come over me I grabbed my husband's arm and said do you think and then he interrupted me and said Aleesha I think you just met Bryce's angel and from that day on I have nothing but faith and hope in Bryce he started walking a few short months after that and has been doing wonderful ever since! Just keep your faith and trust that God will take care of her! God Bless you and your daughter!

Aleesha - posted on 01/23/2009

Hi I want you to know that it is not your fault that she has cp! I too felt like it was my fault that my son has cp because I felt the same as you it was my body that gave up carrying him I was 29 weeks when I had him. But I know that God gave me my son for a reason! God gave you that little girl because he thinks your special and he felt that you would do a great job raising her no matter what! I had given up hope that Bryce would ever walk he was 3 year's old and I had was having a hard time coming to term's that he had CP and that he would never walk then I lost my hope! Then one day my husband and I were at a mall in NC and this little old lady was behind us we were letting Bryce walk by holding mine and my husband's hands I saw the lady walking closly behind us and said oh I'm sorry go ahead and she said no I'm fine! Then something kept telling me to talk to her about Bryce so I did. She smiled real big at me and said Jesus will take care of him and thats all she said then she stopped walking we went on to the car and I kept turning around to look at her because I had this feeling that I to this day can not explain and she wasnt there she was gone there was no car's going by so nobody could have picked her up and she didnt have time to get to her car or back to the mall entrance she was just gone! I had cold chills come over me I grabbed my husband's arm and said do you think and then he interrupted me and said Aleesha I think you just met Bryce's angel and from that day on I have nothing but faith and hope in Bryce he started walking a few short months after that and has been doing wonderful ever since! Just keep your faith and trust that God will take care of her! God Bless you and your daughter!

Stacey - posted on 01/23/2009

Hi Tricia.  My son, Kaeden, also can not walk, care for himself, or sit by himself. 

I also deal with guilt but my story differs in that my son was born a bit shy of 42 wks. 

Some days I feel as though I have to terms with his CP and other days I secretly cry while in the shower. 

Anyway, it's nice to meet you Tricia and I wish your daughter the best.