Calley - posted on 07/26/2010 ( 4 moms have responded )
My daughter Evie is nearly 3. She had congenital CMV that caused brain damage resulting in many various issues. One of the major ones is Cerebral Palsy Quadraplegia. This has caused her to have spastic muscles in her Hamstrings, Hip adducters and gastrocnemius.
Her Physiatrist asked if we wanted to do Phenol injections in her upper legs, hamstrings and adducters, and Botox in her calves in order to give her some relief and hopefully help her progress with walking.
As of now, she is unable to stand alone. She wears AFO's and has a gait trainer, a Rifton Pacer. She loves it and is very very excited to be in it and upright moving it around. She especially loves to run into walls and furniture as well as stand up next to her sister and cousins and touch their noses.
She seems very motivated to learn to walk, VERY. We want her to do well, and we're wondering what you moms out there have dealt with when it comes to these injections.
I have some worries about Botox since it is Botulism. I mean, that's awful sounding. I've heard as well that it doesn't work long since their bodies grow immune to it eventually.
Thanks everyone for your help.