Hi!

Kristie - posted on 05/21/2009 ( 15 moms have responded )

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Hi everyone. My cholestasis story: I probably had it with both, but was actually diagnosed with my second. Had her March 25 this year. Had non-stress tests twice a week and had to deliver at 37 weeks. But we are both healthy and very grateful to my Dr, who knew right away what it was when I told her my symptoms (my last doctor told me it was just normal pregnancy symptoms). Just wanted to post an interesting bit of info too: Don't take estrogen based birth control. Cholestasis is a counterindication (sp?) of taking estrogen based BC. So I am going for the copper IUD the first week of June. Even with these and other complications, I'm not quite ready to say my family is complete, otherwise we'd go more permanent. Anyway, it's nice to meet you all. It would be nice if this condition was more widely recognized and diagnosed where appropriate! It's not even mentioned in most pregnancy books off the shelf.

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[deleted account]

You should be on medication to control your bile acid levels, which are basically toxins in the blood, which get to baby. As far as diet it is good to eat very little fats and when you eat meats make sure they are lean (chicken breasts, 93/7% on beef - stuff like that) and also drink lots of water. My two favorite websites are www.ocsupport.org.uk (talk to he women in charge of the site about getting involved in their research - they are lovely ladies) and www.itchymoms.com These are great sources for basic information. Most doctors don't know about this disease and/or don't take it as seriously as they should, so it is VERY impotant to inform your self, to stand up for your self, and to take the necessary precautions in terms of your diet and medication. Something that I am bugged wasn't taken seriously with me was getting my blood drawn on a consistent basis to amke sure that the bile acid level weren't soaring too high. They can become extremely dangerous very quickly and there really is no way of knowing except for these tests. I'm going to start a post about things that helped relieve people's itching, so watch for any responses. Best of luck!

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[deleted account]

I had the 2 NSTs as well. That's how they decided to induce me. My fluid levels has slightly dropped and so had the babies heart rate - not enough that they would have normally been concerned, but due the the OC they wanted to stay on the safe side. I was induced at like 5pm-ish and had my little Sadie at 9:55pm. Thakn goodness it went so quickly, because it took FOREVER with my first. I stopped itching within a couple of days and it definitely was almost unnoticeable by the 3rd day. The first night I barely noticed, because I was in excruciating pain (the numbnuts kept me on the petocin all night - I didn't realize this until the next day - and I couldn't take any drugs because the pain came on so suddenly that I was puking - BAD DAY). The second night I noticed it enough that I kept waking up and was fidgety, but still slept loads more than I had been. I don't remember it bothering me once I got home.

Kristie - posted on 10/26/2009

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What Stephanie says :) Especially about fats, keep them as low as you can. Non-fat dairy is a must! Also there are foods and herbs that can help with liver function. The two websites are where to start for more info. Make a detailed list of questions to ask at your next appointment in writing and give a copy when you go. I went to twice a week non-stress tests, did everyone else here? Anyway, that seemed the norm to me. Ask ask ask and if you are not satisfied get referred to a high risk OB for at LEAST one consultation.

Charlotte - posted on 10/26/2009

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i ahve to go to the hospital 2moro so i will be asking about the medication.they didnt tell me anythin about it.all they did was check my babys heartbeat,give me a scan and take more blood.they told me i had high levels of bile salts and said i had oc and had to be induced early and come back for regular check ups.they didnt give me any info on this at all i only found out what it was once i had got home to read about it.they havnt told me any dangers or given me any advice which i dont think is very goodi have read that i should be takin vit k aswel.think ile be speakin 2 my midwfie

Charlotte - posted on 10/23/2009

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they also havnt given me any medison just gave me tablets to stop the itching

Charlotte - posted on 10/23/2009

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they havnt told me to eat any sort of diet.they have said that they have to monitor me to make sure baby is ok and i may have to have baby early.i wouldnt want to risk at all havin my baby stillborn.i went into labout with my daughter at 38 weeks but didnt have oc with her.i ment do they let u go to your due date with oc or induce u early.from what u are saying i guess they advise u 2 get induced early.which i will if they do!!

Kristie - posted on 10/23/2009

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Depends on what you call full term. Technically they call 37 weeks full term, and that is when I delivered. Beyond 36 weeks the odds of stillbirth increase greatly. That is why they say 37 weeks, to get to full term. However if you mean going until natural onset of labor beyond 37 weeks, of course you are "allowed" to go further (they can't MAKE you show up at the hospital), but there are risks to your baby that you have to be aware of. I don't want to make you scared or worried, but monitoring isn't always an effective way of catching fetal distress, especially since it is usually only twice a week. I'll try to find the article. Anyway, it is likely that you may end up with early labor too. Either way, try to find out about medicine and diet to keep the bile acids under control.

Charlotte - posted on 10/23/2009

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i got diagnosed today with OC at 29 weeks.i am very itchy.its frustrating.i think the cause of me having it is because i have gall stones.i had a growth scan to check everythin was ok.baby is growing fine so thats good.is it likely that i will get induced early?the doc said maybe but is it ever that they would allow you to go full term?

Kristeen - posted on 06/28/2009

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Hi all,



I had OC with my first pregnancy - my midwife was ace and noticed the symptoms when I described them at 28 weeks. Was monitored very closely, but ended up going into early labour at 32 weeks. Thankfully they managed to postpone my labour by 2 weeks with drugs which allowed my little girl to get steriods to mature her lungs. She was born at 34 weeks and was a teeny 4lb 3oz - but other than being tiny, she is perfectly healthy. She is now 2 years old and an absolute gem. I'm thinking of having another soon and I know there is at least a 60% chance I'll get OC again.



I also cannot take the combined contraceptive pill and had to change to a mini pill but other than that have had no long term problems after giving birth!

Kristie - posted on 06/24/2009

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I got the copper IUD placed and so far so good. It's good up to 10 years, and insurance paid for it. I'm sure after how much my pregnancies have cost them they were more than happy to pay ;)

[deleted account]

Emma, have they decided what to do about your continuing liver problems?



And you could always put the IUD in if you're not up for any surgery. They have a 99.9% success rate and can last up to 5 years. They cost about $800 (?I am pretty sure?) without insurance, but most insurances cover part of the cost on them, because they are so successful and last for so long. Just an idea, if you hadn't thought of it yet.

[deleted account]

Thanks for your story and it's all so true! Glad your little baby and you are healthy and strong. And PS - I'll keep looking into the joining thing. Sorry it has taken so long.

Emma - posted on 05/28/2009

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I had this with my 3rd pregnancy, no symptoms at all with my other 2. My doctor was also great and had a lot of tests done once a week and on pills. I was induced at 37weeks and my daughter Sophie was 6lb 9oz which was the same as my 1st at full term. I am still itching now 12 weeks later and my lft test show my liver is still having problems.
We are sure we are finished our family and my doctors wont recommend any form of hormonal contraception for me so its down to the hubby this time!!!!!!!!

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