Osteofibrous Dsyplasia

Julie - posted on 04/20/2009 ( no moms have responded yet )

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My son was diagnosed with this rare bone tumor called osteofibrous dysplasia, he is 1 year old. I was wondering if anyone had first hand knowledge of this and what we can expect for him in the future as far as breaks, surgery's and so on. Any information would be good the internet has good information but I would like first hand experience of parents going through this with their own child.

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