A place for family and friends of children with the rare childhood disorder, Landau-Kleffner Syndrome.
With LKS most children have a gradual or sudden loss of the ability to understand and use spoken language. All children with LKS have what is called "abnormal electrical brain waves" that can only be found when completing an electroencephalogram (EEG), a recording of the electric activity of the brain. Most children with LKS experience one or more epileptic seizures that usually occur at night. Some children also have the combination of hyperactivity, aggressiveness and depression. Many names for this syndrome are known as, infantile acquired aphasia, acquired epileptic aphasia or aphasia with convulsive disorder.
My daughter Kaitlyn was diagnosed in 2003 with LKS, at the age of 2 1/2. She had a grand mal seizure and then the sudden lose of speech over the next 2 months. She has tried several different seizure medications as well as predinsone. Now, almost 8, Kailtyn has been able to build a vocabulary of 20-25 words. We pray each and every day that someone will find a cure for this heart-breaking syndrome.