Parents of kids with blood disorders

I'm organizing this group as a support system for parent's of children diagnosed with blood disorders. My son has Neutropenia and often times I feel like I just don't understand what's going on and that the doctor's aren't able to give me any clear answers or solutions.

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Cyclic Neutropenia

Hi Im Jen and have a daughter Hope who was diagnosed with Cyclic Neutropenia. Its one of the rarest forms of Neutropenia with an incidence of 1 per million. Looking for any...

42

Autoimmune Neutropenia

My son was just diagnosed with autoimmune neutropenia (after his send hospital stay in a month). Anyone else dealing with this? I would love to hear what others have...

15

MTHFR

Anyone here know of it? I was diagnosed at 8wks pregnant. Now I have a beautiful baby girl thanks to an excellent OB/GYN and a LOT of shots and pills. (totally worth it!) I just...

6

Spherocytosis?

Is anyone familiar with hereditary Spherocytosis? I have a three year old and a three week old, both of whom are thought to have Spherocytosis. We go to a pediatric...

17

My son and Neutropenia

June 20th: CBC~ everything was okay until they got to the White Blood Cells. Normal White blood Cell low-- 6 HIM---5.9 (he is considered borderline low) They found an issue...

1

Intro

Hello. Just saying hello for the first time. I am Anyua and my 6 year old daughter, Jaiya has been dealing with the disorder since she was 16 months old. On December 10, 2013...

3

Severe Neutropenia

My 25 month old daughter was just diagnosed with severe Neutropenia, for the last 3 weeks her #'s were at low 200... Anyone out there that can tell me more about this condition?...

1

Cyclic Neutropenia

Hi. I pray all your children are happy and well. My daughter is 5yrs old and has cyclic neutropenia. We have been blessed that she doesn't get sick often. We've only been to the...

0

need help

I am doing my own research on cyclic neutripenia because I believe this is what my son has. Has had reacurrent fevers since he was 5 months old-now 15 months old. We currently...

0

Neutropenia

My 16 year old daughter was diagnosed with Neutropenia, not sure of what form yet, our doctor thought maybe Cyclic Neutropenia, but after 6 weeks of blood tests not sure. They...