SOOOO Lost

Jess - posted on 10/03/2011

It sounds like you have put an awesome team of people together for him. =) It's always tough in the beginning I think because you really don't know what to expect. They may grow out of some things but not others, and I know I was worried about his interactions with other people and his coping, etc. Plus, even within each of the three majors labels on the spectrum there is still a lot of variety between children and their particular behaviors. Mine had trouble with pronouns for a while too. He also has some behaviors that made me worry about OCD, but he grew out of those and has since found other fun behaviors ;) It sounds like you have a wonderful support system, and even though it may be difficult at times, just remember you're not alone.

Carri - posted on 09/25/2011

Thank you Jess for reminding me to update hehe.

Brian got his Evaluation done early..June 2nd. They diagnosed him with PDD-NOS... even with all the reading I dont fully understand the diagnosis.. My husband refuses to say Autism... so he will say "slightly PDD-NOS"... ofcourse then he has to explain what that is! Brian is getting ST,OT, APE through Special Ed Preschool. He has become more open at home.. but his language seems like translated spanish (verb before noun). he also still mixes up he/she/him/her...

Lately we have been trying to find a toddler psychologist (play therapy) for him due to his new issue...biting himself.. he doesn't seem to hurt from it, but he is leaving major marks! he does it as self stimulation I am sure.. but he can't be going to school with jaw mark welts!!!

Jess - posted on 09/25/2011

I'm curious how the test went and if he has been diagnosed. Whatever the diagnosis, there are tons of resources out there to help him and your family. There are a lot of people who can help you who have gone through similar situations. Make sure you have a circle of people that you trust to handle his care. This can include a number of people depending on the needs of your child, such as a primary physician, a child psychiatrist, a psychologist, an occupational therapist, a speech therapist, etc. Make sure you feel comfortable with all of these individuals, and don't be afraid to ask for second opinions.

Beth - posted on 05/16/2011

I am not a doctor and I am not diagnosing - but I am an educator and just from the little you have told us it does seem like he is behind where he should be. Now with that said, all children reach their milestones in their own time and not all at the same time but I do believe you may have some concerning areas to address. I wonder though - does he go to daycare? If not I would join some playgroups so he sees others around his same age. Children of that age copy SO much that it might help with some learned behavior.........I totally know the frustration you are feeling. My son is quirky and I have just come to find out that those behaviors I called quirks are actually the behaviors of a child with autism.......deep down I knew but yet I was in denial. Now I am empowered with knowldge of how to help my son the most andtons of support when I need it on the bad days and really bad days!
Hang in there!