Hello Everyone!

[deleted account] ( 17 moms have responded )

As you know, Celiac Disease can be very hard to deal with- especially while pregnant and juggling kids. I thought this group would be a nice way to give support, offer advice, share recipes, etc.

Also, many people with celiac also have food allergies, which is another story in itself. Feel free to discuss all!

MOST HELPFUL POSTS

Kristy - posted on 01/16/2010

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I have one daughter and was unaware of my celiacs while pregnant, but would love another baby... I am scared though. Can my body handle a pregnancy? Will it harm the baby if I get cross contamination? How do I know when my body is healed from all the damage I caused it? It's all so stressful! I think for sure I am going to wait another 6 months to a year. I would love to hear about all your possble sucessful pregnancies.

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Brandy - posted on 07/10/2012

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I would like the information. We're going to be trying soon. I'm just afraid of passing it on. What special or different things or test do I need??

Marina - posted on 03/03/2011

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I have CD, my daughter and husband do not. They eat what I eat. Theres so much gluten free food options now. If anyone ever needs help with finding recipes, ive gotten pretty good at finding them.

Nicola - posted on 08/17/2010

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Hi there,

Glad I found this site! I have Coeliac disease. took 30 years of so much grief to finally find that out. I had a Daughter 4 years ago, on a Gluten diet, and even though I was deathly ill around the clock, I have a healthy 7lb 8 baby, other than its looking likely she is Coeliac too.
This year I have had two miscarriages in a row, and suspect I may be pregnant 'just' again, I have had major problems this year with contamination etc. and hidden gluten...My Gyne/Ob feels this could be the cause for the recurrent miscarriages. I have been super strict last week or so and continuing to be, but am so scared that the left over effects may cause another miscarriage.
I have heard that being gluten free 100 % makes my chances of my next pregnancy being successful, does anyone else have any experience with this?

Nic

Sheena - posted on 05/02/2010

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OMG.. first off i have to say i LOVE this group! i was going to make one but i thoguht i would check n see if others started one... i am 20 years old n i have showed many many many many many signs that i have celiac yet all the doctors thought i was just crazy n that i conplained about everything.. i ended up gettin pregnant unexpectedly dec 2008 n miscarried then i was so upset n i gained 30 pounds n i really wanted to have a baby so we (my fiance n i) tried a few months later n got pregnant right away. i was so sick at the beginning my pregnancy n i keep telling my doctor, i went to the hospital a few times.. my symptoms were vomiting, severe diarreah (15 times a day), lossing weight, severe stomach pain (felt like someone was stabing me wit a knife), depression, anxiety.. alot of these problemsi have had for many years n when i got pregnant they all came at once and like just blow up.. i was always crying i was always in pain.. just thinknig about it makes me so upset... finally when i was 20 weeks pregnant i fainted at save-on-foods.. yes now someone well pay attention to me n stop telling me "o just eat bread, crackers..." so my doctor meantioned the words celiac disease n i was like o my aunt has that... wat is it? she didnt know much about it but got me on a gluten free diet while i was in the hospital.. they kept me for a few days to make sure i was doing ok.. then she sent me to many doctors.. some im still going to see because im having rashes from the gluten..



so i had my son january 11th 2010.. my doctor put me on a drug.. opps gluten in it.. for the first month my son was born i was in sooo much pain n having so many problems.. again! i was very lucky tho because my son has nothing wrong with him so far that we have noticed.. he was born 7 lbs 7 oz n 20.5 inches long so he was a good size.. he does eat alot tho.. like he is always hungry because he wasnt getting everything he wanted when i was pregnant or something lol.. in total for my pregnancy i lost 30 pounds then finally in the last 3 months i gained 10 pounds.. i lost my ass seriously i use to have a big ass n now its gone.. thank you my baby boy! :D



since my celiac disease is soo bad.. like even one crumb of gluten n im running to the washroom and getting severe pains in my stomach i well NOT allow my son to have gluten when he gets older... he could eat something with gluten n then get me containmated.. n he could have celiacs anyways.. after i was diagnosed my sister found out she has gluten intolerence, we belieave my dad has it, my aunt has it, my grandpa had it.. so it really runs in my family... an other reason i well not give him gluten is because i have dyslexia (which is y my spelling is bad) and i have ADD.. studies have shown that a gluten free diet can help with both of these.. an other reason is because its a healthier diet for him... when i tell people hes going to be on a gluten free diet there like y would u make ur child miss out on so much of the "good stuff" it makes me feel like im dumb or something.. but the more i find out about celiac disease the more im able to defend my choice...



to Kirsty... make sure u take folic acid while ur pregnant.. u can even start taking it a few months before u want to get pregnant.. my doctor had me on 5 mg of it a day.. which is like way more then in prenatal vitamines... she put me on that because i have spina bifida occulta.. but i bet if i wasnt takin it he would have spina bifida since i was sooo sick... theres some info u can find on google about being pregnant wit celiac disease... i want 3 more kids so dont be scared.. everything well be fine if gluten just stays away from u lol good luck!

Alison - posted on 09/25/2009

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I was so scared during my pregnancy as i had got to ripe old age of 24 without been diagnosed and was assured i had irritable bowels. I lost so much weight. I was 13 stone when i fell pregnant with em and by the 3rd trimester i had gone down to 10 stone. then for 9 weeks after pregnancy i had the full blown problems that come with coeliacs and lost a further three stone. We desperately want to add to our family after having two miscarriages, but i do hace some anxiety about the symptoms been magnified again. Equally i found that my doctors were not very well informed with the condition or how to live with it. My daughter is now 6 years old and we have never been offered an antibody test to see if she is coaliacs but we have gradually introduced gluten to her diet with no ill effects.

Gabrielle - posted on 05/14/2009

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I am new here and pregnant with my second child. I do have Celiac Disease, my son (21 months) tested negative for the antibodies. I just wanted to introduce myself, and say "hello!"

[deleted account]

That's true- I bet it is hard for the nurses, too. Cookies are definitely a good idea!



I am due on July 22. Almost half-way there at least! We don't know if it is a boy or girl yet, but should find out in about 4 weeks when they do the developmental check ultrasound at 20 weeks. I'll let you know!

Valerie - posted on 02/05/2009

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I will try and find all the info and post it for you. All of this can be a pain not only for you but also for the nurses. To try and keep everyone positive I took a plate of cookies with a thank you for being patient note for all the staff when I went into the hospital to deliver. I think it helped........

I hope all is going well for you. When are you due?

valerie

[deleted account]

Yes! It was all helpful! Thank you so much. And if you could put up the lab info where you had your son tested because I know that is something I want to do after my baby is born, too, but didn't know how or where. As for the hospital, you would think they would be a little more in control of the cafeteria and know how to handle people with special needs, so I will definitely be packing and planning for food. Also about the meds for me and the baby, that is another thing to think about. If you could post your plan, that would be helpful, too. I guess it would be good to go to the hospital and talk to the labor and delivery floor before hand and make sure they understand everything. That is a good point.

Valerie - posted on 01/28/2009

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I got pregnant shortly after being diagnosed so I did not have a lot of time to adjust to my new eating arrangement before having to also add in all the restrictions associated with pregnancy (i.e. no soft cheese, no cold cuts, etc.). I was completely overwhelmed and was afraid to put anything into my body because it could possibly hurt the baby. I was anxious and had to focus on not freaking out (which could have hurt the baby more). So I took control. I ate gluten free. I attended a conference on Celiacs disease and cornered the doctors for advice on how to prevent my child from getting the disease. I was instructed to eat gluten free and most importantly to breastfeed my child once he was born. Sorry if this stuff is not new info for you guys. I was told to only give my son breast milk (gluten free of course) for the first six months and then introduce rice cereal. I was told to slowly introduce gluten in the 7th month. Small amounts like a bit of a cracker crumbled into the rice cereal. I tested my son shortly after birth for the alleles through a genetics lab (i can get info for you if you are interested) by swabbing his cheeks. (the way I saw it was that I did not want to have to worry about him getting the disease and doing all the precautionary stuff if he did not even have the alleles for it). It turned out that he did so I followed the researchers advice and breastfed and introduced gluten at 7 months. I recently had him tested for the antibodies and he does not have them. yea! As for the birth plan. Some things to consider are what meds are you going to take and to check in advance if they are Gluten free or not. Ask your doctor about possible meds they may want to give you as well (like stool softner which may be coated with gluten for easy swallowing). Delivery often occurs outside of the normal hours so when you are ready to eat the kitchen may be close or the dietitian may not be available for consult (after a long labor and no eating for over 30 hours I was hungry and because it was late at night they could not get any gluten free food for me. My sister had to go home and bring some food back for me to eat.). At birthing centers/hospitals they will often have a small refrigerator on the floor with pop cycles, juice and light snacks for the mothers while in labor. I took all my own labeled gluten free so others would not eat my food.
I typed out my plan that included an explanation of Celiacs disease and the importance of myself and my baby being gluten free. I made sure they knew that He and I had to have the meds be gluten free (i was sure to inform them that if it came to a life and death scenario I did not care if there was gluten). There were other things that I'm not able to think of that was on there. I will try to find a copy of it and let you know. I know that you have to be careful with the food even in the hospital when they tell you it is gluten free. The first breakfast they gave me was rice krispies which contains gluten in the form of malt. I informed them of their mistake and yet the second day i was given it again. So you really need to look out for yourself and bring your own food. Sorry this was a little rambling. Feel free to ask me any questions. I will write more things to consider as I think of them in future posts. Let me know if any of this was helpful. Take Care,
Valerie from Cleveland

[deleted account]

Thanks for joining! I think about what the child will be like and what we will do, too. Congratulations on being pregnant! It is good that your doctor is knowlegeable.

Anne - posted on 01/28/2009

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Hi-this group is a great idea. I have known about being celiac for about 4 years and finally am feeling like I have a great handle on it. Now, I'm 27 weeks pregnant and I worry every day that our child will have it and how I will deal with it. Plus, we are having a hard time finding a day care that will even deal with the possibility of a child with food "issues." Thankfully, we have a doctor who is very knowledgeable and live near one of the best hospitals in the world. I would also love to hear about the special planning that is needed-I have no idea what to expect at this point. Thanks!!

[deleted account]

Yes, that would be great! What type of special planning did you have to do? And what all did you make sure your family doctor knew and understood? Thank you!

Valerie - posted on 01/26/2009

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Congratulations on being pregnant. I loved being pregnant but it was challenging. I had a hard time keeping food in when I was pregnant. I lost weight at first but then gained normally. I was sure to take a good prenatal vitamin and always carried gluten free food with me everywhere. I have found that most doctors are not well informed about celiacs disease so i did a lot of educating. I have worked with my family doctor to bring her up to date on the disease and decided to have her be the one to deliver my baby. I created a birth plan well in advance that focused on the celiacs disease. I don't want to overwhelm you but if you are interested i can share more about what i did for my pregnancy. Just let me know if you are interested. I think that a hard part of it for me was that my friends and family who don't have the disease did not understand that it might be more difficult for me.

[deleted account]

Hi! I am very glad you found it, also. I'm glad your son hasn't tested positive for the antibodies yet and sorry about his being hard of hearing. And to tell you the truth, I'm just learning how to do it! You probably know more than I do- I'll be 4 months pregnant in one week and two days with my first. I talked to my doctor and he didn't seem very concerned, just asked how I was doing. But, it is hard! I always get worried I'm going to get sick and it will hurt the baby. Right now, I just try to plan for every meal and make sure I carry food with me, like raisins or rice bars (some sort of pre-packaged snack) in case I'm out longer than expected and if I'm with others for the day I try and pack a lunch so I don't risk getting sick. What did you do??? Do you have your son on a special diet or anything? I'm pretty sure that our baby will test positive for the alleles, also. How is he doing?

Valerie - posted on 01/24/2009

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I am very excited to have found this group. I have celiac disease. I have a 21 month old son who as does have the alleles for the disease but has not tested positive for the antibodies. The pregnancy was challenging and my son is hard of hearing. We don't know what caused it. We would like to have more kids but I am a little apprehensive. I agree with you when you say that the disease can be hard to deal with especially when pregnant or when juggling kids....so how do you do it??????

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