Tracey - posted on 05/01/2012 ( 2 moms have responded )
Im new to this site, my friend found it for me and im glad she did!
I have identical twin boys born prematurely at 25wks last june, we have Max, who as far as we know has no major health problems, and then we have Oscar, who is profoundly deaf in both ears and has recently been diagnosed as having Quadraplegic Cerebral Palsy.
I knew something was wrong as Oscar never hit any of the developmental milestones, even taking into account his prematurity and adding 3 months to the reccomended age! He is a very demanding little boy. Sometimes it feels as though if hes not asleep hes always crying. I find it very hard to know what his needs are as he is unable to express himself. When he cries he goes extremely stiff and i find it very hard to hold him properly. I find some days all i do is cry, not only am i finding it hard to cope with Oscars disability, but i feel tremendous guilt over the fact that i do not spend as much time with Max as i would like because i am always caring for Oscar.
Id love to hear from anyone who has had a similar experience, and for someone just to tell me it will all be ok and that it will get easier! I can talk to my friends but as they all have healthy, happy children, as much as they care about me they do not understand my pain. My partner and myself are so worried about Oscars future and how he will develop.
Thanks for reading guys!! xx