CP and regression in motor skills

Daniela - posted on 05/30/2010 ( 3 moms have responded )

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Hello everyone,
I'm pretty new to this group. My daughter Lilly is now 22 months old and was diagnosed with mild CP last summer. Since then we've continuosly done physio and occupational therapy with her and she's always progressed. The CP affects both her legs - nothing else is affected. The muscle tone in both legs is increased and both feet pronate inwards so we've decided to buy the PIEDRO shoes for her. She started walking with a walker 2 months ago and after she almost fell once, she didn't want to do it again. Then all she wanted to do is walk holding our hands and it worked so well - she's even able to crawl up the stairs in our house. Pulling to stand and cruising were no problem.

For the last few days though she's not asking to walk anymore and when we put her down her feet take a very long time to go down from her tip toes. She never had a problem with that. Furthermore it seems like she can't straighten her legs anymore and her upper body is bent forward so that she is not able to step - something that she was doing very well.

We are concerned and don't know if this is due to a growths spurt or something else. We will try and see our pediatrician but don't know how long the wait will be so any advice will be appreciated. Has anyone had the same problem ? She doesn't seem to be in pain but when I do her stretches she whines a bit like it's uncomfortable.

Our OT will come in on Tuesday and I emailed her beforehand - she's also concerned as the said that she has never seen a child with CP regress before without any apparent reasons.

Please help.

Daniela

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Caroline - posted on 07/04/2012

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My daughter was born 9 weeks premmie, weighed 3 pounds & 11 ounces, she had many challenges. She was not able to walk un-assisted, she needed support to sit up, drooled constantly, developmentally delayed, frequent body tremors, some seizure like episodes, kind of in a daze all the time, clenched left hand, choking on her food, speach problems, left side weakness etc. She was elevated on her toes when holding her to walk, she was splinted for a leg brace & they wanted to give her botox, but after researching botox and discovering how it’s made and there were no long term studies I decided against it. Her life was restricted & so was mine ...and it looked this way for the rest of her life ... & mine. I felt hopeless.

We were attending all sorts of treatments and therapies which cost a lot. A friend told me about some special wellness supplements from a particular company, she started taking them in her yogurt, after one week she was up walking un-assisted, it made an immense difference to her brain function, memory, balance, mood & cognition in a short space of time. I was elated!

I am so grateful to the person that told me about this incredible technology. She now has a life now ….. and so do I. It’s now over 14 yrs later and she continues to take these special nutrients, she has attended normal public schools, she is almost 16, in a few weeks she begins driving lessons and has just started an after school casual job in a fast paced food takeaway.
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Nadia - posted on 04/21/2011

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Hi,
I would like to share some information that can be very helpful for moms which children have CP. For us parents it is very important to know if we are raising our children right and if not how to do it properly. Because each child is an individual and we parents need help to find the correct approach.
It is so important to find a really good Doctor, knowledgeable, experienced and a humanitarian, that your child and you could work with as a team.
I know one of them, it is Natan Gendelman. Natan is a very knowledgeable, experienced and humanitarian practitioner. He puts a lot of effort in his work and you can see the result of his treatments very fast. He and his group of therapists are doing an amazing job! Working with them at the treatments you feel support and you feel that you are not alone!
I would strongly recommend clinic Health In Motion Rehabilitation. This clinic specializes in treating children with cerebral palsy and Autism. You can call or write an e-mail and ask any questions.
4256 Bathurst Street, Suite 204
Toronto, Ontario M3H 5Y8
www.healthinmotionrehab.com
Blog www.enabledkids.ca

[deleted account]

Funny, I joined this group to post similar fears about my own daughter with CP. She is five and has spastic diplegia so only her legs are affected as well. Lately, she does not want to walk at all.

I will say from experience that cp kdis do plateau from time to time and it may seem like they are regressing but may be gaining in other areas. We have been through this many times with our daughter. Our therapists have attributed some of these occurrences to growth spurts.

Every doctor or therapist that I have asked has said that kids with cp generally don't regress.

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