New To The Group

Tabitha - posted on 07/01/2010

Hello, Nice to meet you!

My name is Tabitha Preston. I am the Mother of a 14 year old son with CP. At 5 months within my pregnancy I found out that I was carrying twins. Unfortunatley, one of my twins was Acordiac, meaning he didn't form a heart during his developement. Deondrick tried to pump blood to his twin, but at the same time lost tremendously large amounts of oxygen and blood to his brain. The Doctor's told me I would probably deliver a vegetable and tried to convince me to terminate my pregnancy. I kept my Faith in God and I gave birth to my surviving son. When Deondrick made 2 1/2 years of age, they informed me that he was deaf in both ears, developmentally delayed and his chances of walking were slim. It was at that time they diagnosed him with CP. I, like any other parent, was shocked. It was new to me. My first child with something I had no knowledge of. I didn't give up. I went to every doctor's appointment scheduled and did what I had to do to make my child comfortable throughout his childhood. It was hard and being the parent of a deaf child didn't make him getting the proper education any better. It took years before I even found out that there was a deaf school that could teach my child, so I made the move. Deondrick didn't suffer much with CP, but all the other things made it a huge challenge. Today Deondrick is 14 and just went through back surgery for Scoliosis. He is confined to his wheelchair and recovering well. I don't have much information for you concerning this situation that is any different from the previous postings. Just keep your Faith in God and search for your answers. If you can't get them from your Doctor's rely on other sources. Although I haven't found much help here in Louisiana, I manage everyday to take care of my son and give him the one most important thing of all~~~My love. Send my a friend request. My name is Tabitha Preston and I live in Baker, Louisiana. May God Bless You Always!

Erica - posted on 05/10/2010

hi my son maleeq is 3 and he has cp we found ou at about a yr after a yr of me tellin the docs something was wrong and they didnt listen he is in a wheelchair and uses a walker he has had 2 eye surgeries he wear DAFO braces on his feet and is in public school where he gets pt and ot

Nichola - posted on 03/14/2009

hi,

My son Bailey was born 16days late he was blue and wasnt breathing but finally after about 5 minutes he started to cry, He wasnt feeding very well so was took to the neo natal unit where he had alot of seizures during the night. After 12days in there we brought him home and thought everything was ok with him untill he was 5months old we took him to see a doctor as we noticed he wasnt using his right arm very well, he confirmed it was cerebral palsy. He didnt crawl till 15months and walked at 20months he is now about to turn 5 nxt month, he enjoys most things loves going to school(mainstream) riding his bike, playing football with his little brother although he cannot yet talk we are using makaton with him. He has spastic hemiplegia down his right side, microcephaly and alot of behavior problems he also wears a second skin(splint) on his arm to help him use it more. He is a very happy little boy and has achieved so much we are just so proud of him!

Trish - posted on 03/12/2009

Quoting Danielle:

New To The Group

Hello everyone. My name is Danielle Weaver and I reside in Ga with my Husband and 2 children. Both of my children have CP and am interested in sharing more with all of you. Gabriel (3) was diagnosed at 9 months with CP and my daughter Chelsea (18 mts) was diagnosed at 7 months. We are still on a long rd to pin pointing what particular kind they have seeing as CP is such a "broad" term but, we are slowly getting there. They receive PT and OT once a week and its paying off, they get stronger day by day!

Well I guess I'll add my post here since I'm new too and I cyber-know Danielle.  (Hi, friend!)

My name is Trish.  My DH George and I live in OK.  We unschool our 7 blessings.  The youngest 2 are 14 month old id twins, one of whom (Seth) has CP.  He spent 3 weeks on a ventilator when he was a month old (before he was even due) and apparently had a stroke.  His dev ped says that rather than the kind of stroke that your brain learns to adapt itself around, his was a global brain insult, meaning that most of his brain essentially died.  Thankfully no one ever told him that he wasn't supposed to grow and develop and he is doing just that at the astonishment of his medical community!  Praise God!

Seth also has cortical visual impairment and microcephaly...there's some other dx's too...but mostly he's a happy little guy.  He isn't speaking, but he makes some great little noises.  He isn't mobile for the most part but he has rolled over on his own a dozen times or so this last couple of months.

Seth gets PT, ST, and VT and lots of snuggles and encouragement from his siblings.

Looking forward to getting to know everyone better!

Trish