Any advice will help...

Jannelle - posted on 11/22/2010 ( 4 moms have responded )

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EDIT: I'm out of ideas on what to do for him. If this is normal someone please please tell me. He is eating all of the food in the house and we cannot keep up with him. I use to buy lunchables until I realized that he could go through 4 a day, plus other snacks, and then dinner. I just need to know if this is normal and will it pass or does my son really have a genetic problem.





Does anyone have a child with a myostatin deficiency or even heard of it? I never thought there was anything unusual about my son until he started opening up the fridge by himself a few months ago and eating everything. I've googled strength, high metabolism, and active and there was only one thing that showed up on the search that made any sense. My son is 2 years old weighs 30 pounds and is 3 feet tall. He has only gained 3 pounds in the past 4 months. He has very little body fat on him and when he is active you can see his muscles flexing...I did not know a 2 year old could have trap muscles.

My husband and I mentioned our concern to the pediatrician, who had to bring in a second doctor because when we said myostatin she said, "Huh...how do you spell that?" They were more concerned with how much we said he eats than anything else. They wanted us to film him eating his meals which is not possible at this time for us. We've decided to just feed him whatever he wants for now.

I'm wondering how old are your boys, how much do they eat and what type of physical activities do they do. Mine decided that the stand up cabinet door needed to come off the hinges because he couldnt get the baby lock off...and picking up a full gallon of milk and carrying to the table is easy. Is this normal?

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4 Comments

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Jennifer - posted on 12/11/2010

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I agree taht this doesn't sound normal. I have a very active 4yr old, pretty strong for his age, but he doesn't seem to sompair to your 2yr old. He does have his own health issues (he was preemie) and I have found I have to push, push, push to get Drs to really stop and listen. Always follow you mother's instinct! Something that might help??? My 1yr old is a big eater (still not compairable) and I was having a hard time keeping him satiated. I read something about always pairing a protien with a carb in order to feel full longer. I have been doing that and it seems to be working. Things like putting a bit of peanut butter on his pancake, or giving him cheese with his crackers for snack.

Phyllis - posted on 11/26/2010

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I would certainly get a second opinion, you need a doctor that will listen. Here we have a center that specializes in special needs kids. They are a bugger to get in to, but in the facility they are equipped to record and evaluate children for a full day. They deal mainly with Autism etc, but maybe there is a children's hospital near you that would do an in- patient evaluation?

Jannelle - posted on 11/25/2010

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Thanks for your advice. I wanted to do a food diary but the doctor said it wasn't good enough. I suspect they think my husband and I could just lie/exaggerate on paper. I'll start searching for a video camera after the holidays. I may even change his pediatrician. She is the same doctor who was trying to convince me he wasn't sick last spring and I made her test him for everything and he came back with a positive flu result.
He eats relatively healthy, don't get me wrong he loves it when he gets a dessert but his snacks throughout the day are mostly fruits/veggies. I however never thought about trying to give him a meal replacement drink. I'll try that and see if there are any changes that day with his eating habits. Again, thank you for responding to my post.

Phyllis - posted on 11/25/2010

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This does not sound like a normal thing to me. I would continue to talk to your doctor until you find out what is going in. If you cannot film him eating, you should keep a diary of what he eats.



If he really needs the extra calories he is eating, rather than just wanting them, then there are things that can help, but you want them to be GOOD calories, not junk. You can try to supplement his regular meals with meal replacement drinks (Ensure, Boost, Pediasure) and I think there are drinks out there for his age that are made like infant formula, only flavored, so he gets the right kind of nutrition. I suggest lots of smoothies with fruit, veggies and even tofu. I also suggest that you keep him on an eating schedule so that he is not eating all day long. Even if his scheduled meals/snacks are huge, eating on a schedule can help his body to regulate his appetite somewhat. If he is getting into the cupboards, keep the snacks etc up high and invest in padlocks. Check if there is any way to put the hinges on the inside.



I would try to borrow a video camera or check Cragslist or other sites for one. Obviously the doctors want to see for themselves whats going on, and it may be the only way they will listen to you without assuming you are exaggerating the issue. Good luck.