life after surgery
Julie - posted on 01/19/2011
It seems the doctors would talk to the endocrinologists about the connections to the hormones and seizures - growth spurts during babies growth, puberty, during pregnancy, menstrual cycles, etc. The thyroid, pituitary and hippocampus all work together. The longer you stay on AEDs it can affect thyoid function. Yet, no one ever checks thyroid levels except TSH levels, which doesn't really reveal any thyroid problems unless you have free T3 and free T4 and thyroid antibodies done also from what I have been reading. Thyroid problems can cause seizures, hair loss, anemia, mood disorders, heart arrhythmias, appetite issues, sleep problems, etc. - does this sound like the side effects of your medications? Check these websites out for further information - did you know January is Thyroid Awareness month?
It could explain why sometimes seizures recur after surgery. Thyroid conditions are hard to diagnose also since the symptoms can be mistaken for many other things.
Naomi - posted on 01/19/2011
I had surgery on my hippocampus in August '09. Dec. '09 was my last seizure. They were only able to take out half because the other half was in the memory area. I now have not been on any meds for 6 months.
@Danielle - I had seizures as a baby because of a high fever, which caused the scar tissue. It lasted for around a year. They didn't show themselves again until I was a teenager, but again, only for a yearish. After I was finished breastfeeding my oldest though, within 2 weeks they came back.
Heather - posted on 10/29/2010
i have had a surgery for my epilepsy called VNS(vagal nerve stimulator) about a year ago. i went from having 1000 or more petit mal seizures a day to 1 or 2 a day (sometimes none!) and 3(sometimes more) grand mal seizures a day to 1 or 2 a MONTH!! it has helped me be able to actually live my life to the fullest!! if u need someone to talk to about it u can contact me, it would be nice to speak w/ someone who actually understands
The surgery has been done and I was almost 5 mos free of seizures. I know I was told that any surgery isn't 100% perfect and there would be a chance of still having seizures coming along, but not as many as I did have. I just don't know how to deal with this. I never had this growing up, I had my first one 4yrs ago. When I had the tests done, they were surprized I didn't get it when going through puberty (I have scar tissue, not sure why). After my daughter was born in 2007, they started to come after my body went into wack with the hormones trying to go to normal again, as time went on it go worse. I have my son in 2009 and things never got better. 2010 I had the surgery and things were good for a while and now, I feel like it's going down hill. I don't know what to do, I have my appointment coming up, they know what has gone on, and they have tests to take again. It's crazy, flusterating, and you don't have a good mood anymore. I just don't know what to do.
Joan - posted on 09/06/2010
let me start by saying that i have not had the surgery , but did have the testing done for it and found that i was not a candidate. are you considering this or have you had it done? i believe i did read some older post by someone who has has the surgery so if you can read back you may be able to find them and contact or maybe even check with your neurologist and ask if they might have a patient who has had this done that would be willing to speak with you.
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