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post brain surgery now developing peti mal seizuers.

Callie - posted on 10/29/2008 ( 2 moms have responded )

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In 1997 I had part of my R temporal lobe and complete R hippocampus removed due to peti mal seizures that were non responsive to meds. My seizures are from a closed head injury I sustained in a 1989 auto accident. I was seizure free for years then after the birth of my 1st child (now four) I started having trouble speaking at times. I thought it was due to lack of sleep but I also started having aura's too. With my peti mal seizures, I have a smell/taste related to them. Has anyone experienced this? Or has anyone experience deja vu during/before a seizure? I'm fearful that I can have a grand mal.

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Jen - posted on 12/23/2008

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Hi cali...when I saw what you wrote...I feel I can some what relate to you in many ways...almost 5yrs exactlty I had the complete right temporal lobe and right part of my hippocampus although mine were due to complex partial seizure that I began havin at the age of 22...surgery was at 25....and I'm almost 30....sshhhh....don't tell people that :) I'm always fearful of a grand mal.....but my seizures did come back after brain surgery just not as many...I used to have 20-40 per day....now just a couple but no matter what I always have the strongest auras...and it only affects my vision...it looks like I'm walking wonderland.....and my seizres are rare...I walk/talk...run/yell and scream loudly it it very imbarassing...my son is always so worried of mr...he also feels scared of me...do you feel the way...do your seizures scare your children??? happy holidays!!!...Jen

Moira - posted on 11/24/2008

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i suffer alot of absent seizures where i get the aura feeling and the deja vu but i dont always get the full grand mal mind my kids have got used to these ,they say its a bit like when they ignore me lol i find the more i stress about things the worse i am so try and relax a bit and stay calm i no easier said than done i hope things get better soon

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