having Lupus and raising children

Kellie - posted on 10/14/2009 ( 1 mom has responded )

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Hi, I have Lupus (SLE) and i have a 4 year old, a nine year old and a 16 year old. I'd like to know if anyone has any suggestions or strategies that would help me to cope better. My 4 year old is an extremely active little girl, and can be quite a handful when she doesn't get what she wants - tantrums to the point of her kicking me and yelling at me. My 9 year old is y step-son, he has epilepsy which thank fully at the moment is controlled with medication. My 16 year old has Aspergers Syndrome, Generalised Anxiety Disorder and Oppositional Defiance Disorder which makes her a handful. My children are all wonderful and i love them with all my heart (as any mother does). I hate to whinge, but sometimes it just feels too much. I'd just like to run away and sleep for a week. I have terrible sleeping pattern, it's usually 2am by the time i get to sleep and it doesn't matter what time i go to bed either, I have tried sleeping tablets to get myself into a better pattern, but as soon as i stop taking them, i can't sleep. I refuse to be on sleeping tablets all the time, its not good. My joints especially my hips, shoulders and hands ache constantly. At the moment i am on 300mg slow release Tramal and two Plaquenil a day. The tramal is for my knee injury and the Plaquenil is for my joints. I find the tramal effective for the pain in my knee, and the plaquenil somewhat effective for my joints. I was on steroids for a month and my weight ballooned from 55kgs to 79kgs, which just puts extra strain on my joints. I push myself to go for a walk every day, and if i get hungry between meals i have a piece of fruit, and still not losing weight. But I am still constantly very sore and tired. and my hands constantly swell. Oh well, if you have read this thanks for listening (rather reading) to my whinge, also I'd appreciate any ideas on just how to make things better.

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Kellie - posted on 10/14/2009

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OMG!!!! I was definitely having a shocker of a day when i wrote that. I generally don't feel that sorry for myself. I would however still value and suggestions or strategies anyone has. Have a fantastic day.



Smile - it confuses people and makes everyone wonder what you are up to :-)

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