my daughter shows all the signs and criteria of Dyslexicia we cant figure out how to actually get a diagnosis

Kelly - posted on 02/22/2012 ( 19 moms have responded )

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we live in wv and we are fustrated because the school doesnt want to say she has it and they just state that she is ld and has all the symptoms of a Dyslexic child what else can we do ?

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Melody - posted on 02/25/2012

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I have been a school teacher in three different states, and what most parents don't realize is that schools truly have huge red tape issues. The government has decided that there is a magic quota of children who are allowed to have learning disabilities in a school. Teachers have to continually document behaviors, assessments, and meet about a child for MONTHS before they are allowed to have a child tested for a disability. Children in kindergarten are harder to test because of age and lack of time in school. The system says you can't test a child for a learning disability before he or she has had a chance to learn. Most good teachers can tell parents after a few weeks of being around a child that something is not right. We as teachers are not trained to diagnose, but only to teach, assess, and observe. We want so much to fix problems but truly cannot. If you and a teacher know something is wrong but can't name a condition other than the typical ADHD because neither of you are diagnosticians then don't get angry get help.

Many school districts also do not have the same assessments as doctors. Lots of schools cannot test for or even help students with dyslexia. It is sad but the government has set up an extremely flawed system to help those with learning deficiencies. Schools also do not have to accept a child's diagnosis from a doctor for dyslexia for some reason.

My best advice to any parents is to put your request in writing. If you want your child tested for a learning disability, send a note to the school with your demands. Speak with the teacher and principal. Tell them that you know by law they have 30 days to comply with your request. If you leave it up to the teacher requesting help for your child, he or she will have to follow protocol of 4 to 6 months of watching, trying different ways to teach and assess the same thing, and documenting everything. Save time and demand testing or you will seek legal steps.

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Amy - posted on 04/08/2012

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Update, how unfortunate to say but the optomotrist stated that my daughter couldn't be tested til she was 8 yrs old or so. But I'm not giving up on this. I plan to get a second opinion.

Elizabeth - posted on 03/26/2012

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To have a psycho-edcational test you do not need a referral from a Dr. Contact a childrens psycholgist and make an appointment. My son has be "labled" ADHD, ODD and just a disipline problem. Sometimes children are just "shut down learners." School is not interesting because they dont understand "as my son says, "the teacher is boring."" Then the teacher does not follow the code of Ethics they signed. Its sad to say but it happens because teachers are human too. IF your child recieves an IEP make sure you read before you sign and keep all IEP's. The EC teacher at my sons school was just plain out lying on his reviews. An now after all of the phone calls, pick ups and me loosing my job I have to homeschool him. Hopefully after showing all the lies she made look good on paper so he did not recieve all avalible services she will be at home too.

Melody - posted on 03/26/2012

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The Scottish Rite hospital will test for free in Texas. Also just put in writing to your teacher and administrator that you want your child tested for a learning disability.

Sonya - posted on 03/25/2012

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the same thing is goling on with my son they dont want to test him and I see it everyday when he is at home doing his homework he writes backwards and reads backwards and I have talked to his teacher about his and she says that this is not a sign of dyslexic. So I am looking for help on trying to figure out a way to test him to so if u find out any ideas please let me know. I live in Morgan TX and the school here is ridiculous the teachers will do anything not to help the students out.

Mickey - posted on 03/22/2012

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I'm from WV and my 25 year old step-son was/is Dyslexic. My husband knew that he had a problem around the age of 7. The WV school system does not recognize Dyslexic has a learning disability. He fought for years to get his son help and they simply said that it wasn't Dyslexic he just needed to work harder. Well my Husband moved to Texas, in Texas they have to be tested before they are placed in school. Thank god for Texas... my step-son was dignosed with Dyslexic and he got all the help he needed. Then my husband had to move back to WV in my step-sons 9th grade year... all the hard work my husband and step-son done... went down the drain. The School system was unable to help him with his Dyslexic because they had no teachers that specialized in that area. It's a shame that the State of WV cannot and will not recognize that this is a major learning disablity that will forever have an effect on ones life. I know first hand how my son feels. He is now a fine young Gentlemen but he does not have the confindence to get a higher education because of him being Dyslexic. He is a chef at a well know resturaunt... but he wants to be more, but he is trapped. Good luck and I hope you are able to find help. Just fight for your child, even if you have to take it to the State Board of Education.

Amy - posted on 03/11/2012

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Perhaps a pediatric optomotrist may help (not an opthromologist). My daughter, whom also has some developmental impairments, will have an appt with a pediatric optomotrist to test for visual/perceptual issues. She doesn't track items very well which in turn effects her reading skills and writing skills. She still writes some letters and numbers backwards and she will be 7 in June. Her occupational therapist suggested this. I'll keep you posted on the results. Best of luck.

Melody - posted on 03/10/2012

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Some schools do not test for specific learning disabilities like dyslexia. Many times they can only find a weak area in reading or math skills. The school will generally service the child in a small group etc., but it may not be specifically tailored to the needs of a dyslexic child.

Kelsey - posted on 03/09/2012

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We had a meeting with our teachers and counselors and they cannot say that my DD (7 in first grade) has Dyslexia. They can only say she has a learning disability. So that is kinda bothersome. I guess they don't like putting those kind of labels on them. So I really don't know and maybe some how we can get that figured out.

Tiffany - posted on 03/09/2012

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Wow, I am appalled at the troubles everyone seems to be going through. My son is 6 and in first grade. His teacher requested to meet with us and arranged for him to be tested for dyslexia. His tests confirmed our suspicions and a 504 plan was set for him. Even with all of the wonderful support provided by his school ,he will most likely be held back next year. I am unsure of the state laws that all of you are dealing with but the school should be able to test him if you request it. Speak with the school counselor or principle if the teacher can not help.

Anjeanett - posted on 03/05/2012

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Her age is a factor. You can always have your own testing done, as another parent said. If you live close enough to Columbus, you can attend parent workshops and get help with IEP paperwork, laws, etc. at COSERRC. The number is 614-262-4545.

Lisa - posted on 03/05/2012

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Request, in writing, an evaluation by the school for a variety of Learning Disabilities including dyslexia and disgraphia. By law, IDEA, and under "No Child Left Behind" the school must evaluate within a specific time frame, around 30 days. That is their legal obligation and as your child's advocate, you must insist, even by going through multiple levels from teacher, to principal, to school superintendent.All avenues, including the "on your side" media that many local news stations employ. Another route is to do testing through a private educational psychologist and bringing the results to the school and demanding an IEP. It is difficult to get a diagnosis from the school, but it is also very difficult to "unlabel" a child. Be very careful and be very sure as you persue this issue. SPED in the US is not always equal to a general education program, It can be very watered down. If you can afford it, go private. There are alot of scholarships available to send a child to a private school, especially if a public school can not or will not meet your child's educational needs

Kelsey - posted on 03/04/2012

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My DD is 7 and in 1st grade and I have heard from two of her teachers that she has dyslexia. She is all the time reading words backwards and also numbers. I am meeting with them Tuesday to find out what can be done. I am hoping that we can fix it and I don't know if it has anything to do with her learning disability. It is kinda hard to hear and I feel bad for her but maybe we can fix it. I hope things go ok for you and you can get your answers. By the way, my daughter has and IEP and is seen twice a daily by one of the teachers for this. She meets with a group and by herself.

Laurie - posted on 03/01/2012

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Melody,



Thank you for such an honest answer to what sooo many parents ask every day. Our school would somply NOT help my son, even after we got a Dr. from the U of IA Childrens hospital to send a letter saying he is dyslexic and needs at least a 504 plan! They looked us in the eye and said "no".



Our system is soooo flawed but nothing will change until more parents get on board to what is really happening, that maybe it's NOT the teacher or even the principals fault, it is the system itself.



There are parents here that were told their kids were on an IEP, only to find out they weren't! No IEP on file. They basicly lied to the parents to make them be quiet, It is really sad.

Rita - posted on 02/24/2012

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Usually they don't test for dyslexia until they are at least 8 years old. Are you or your husband dyslexic?

Michelle - posted on 02/24/2012

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Are there any programs in your area that work with parents? Here in Chicago (a system well known for giving parents the runaround) there are programs that teach you how to advocate for your child and talk the same language as the school system to get them to do what they should by reminding them that they must.



If she is LD, she should be given an IEP anyway. If not, demand why not, if she's being identified as having needs she should have an individualized education plan (IEP). At that meeting, I recommend having someone there to take notes so you can concentrate on discussing your child's needs.

Cori - posted on 02/24/2012

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Her age is going to make a big difference on this one. I was worried about my daughter up until the end of first grade. She also showed all the signs. I was frustrated at being told not to worry and she would grow out of it.....but she did.

Carol - posted on 02/23/2012

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I have a friend who is dyslexic and she saw all the same signs in her son by kindergarten. Our terrible, corrupt, and failing school system gave her the same run around and even told her that there's no way to diagnose at such a young age (same school system that gave up on my 5 year because he learned too fast - I see a pattern.). She's an awesome mom and went to her pediatrician, got referrals, and got him the help he needed. The down side is that she also got all the bills for the testing and the school did absolutely nothing to help. Thank God for her, they moved to a better school system and he went to a special school that taught him how to deal with the dyslexia and other learning problems. He stayed back a year, but he kicks butt in school now and he's the hardest worker I know.

Kelly - posted on 02/22/2012

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How old is she? My son was having some issues in K (not dyslexia) school was not cooperating so I took him to his Dr. and got a referral to a specialist they did some testing and we found out what it was he now has an IEP , he isnt gifted but was bored by the work he was doing ,the class wasnt going fast enough for him) he would draw on the side of work ,chew on pencils , sign to himself all sorts of things to occupy himself he was "labled " by his teachers as ADHD and ODD he isnt even close to being either one of those! if they wont test her speak to the School Board testing will help rule it out !

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