SENSORY PROCESS DISORDER SUPPORT NEEDED

Jennifer Ann - posted on 10/23/2013 ( 9 moms have responded )

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hello, I am a mother of a 7 year old that has SPD. She was diagnosed with it when she was 3. She finally grew out of her 45 min to an hour violent episodes after some OT therapy and getting informed about the disorder, knowing what triggers it, etc but now she has started 1st grade and has started having a hard time with behavior again. Academically she is great average to above but she is starting to become violent again. Any little thing a school will set her off and she flips to like another personality putting her hands on other children. She also is starting to talk back to me at home. Anyone have suggestions to help with her behavior?
Jennifer

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Celeste - posted on 10/31/2013

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Is she sensory defensive or is she sensory seeking? I think it would help for her teacher to keep track of what sets her off. I have a daughter that also has sensory issues. She copes with them, and can function. However, the student I am a one on one CAN NOT function. I know what his triggers are, and how to calm him down.

One thing that helps is something called "milking". You "milk" their arms (massaging their arms, up and down their forearm), each side. I found that this has helped my sensory defensive kids.

Have you read "Out of Sync Child"? That's a great book about SPD

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Jennifer Ann - posted on 11/01/2013

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She is definitely a seeker but does have a big issue with clothing. Unfortunately nothing was really explained to me when she was diagnosed. i have seen ppl talking about vestibular and other disorders connected with SPD so i have done some research myself and ALOT describes her with the vestibular and tactile disorder. I am still kinda learning as I go. She doesnt have good insurance so we were kinda told oh she has SPD i'll refer you to a OT therapist. the OT saw her for maybe 6months which helped termendously, her 45 min to an hour full blown screaming, shaking, hitting episodes stopped finally but then she did another eval on her and the insurance said oh she is cured basically and that was it. Things have been ok up until her brother was born in December and have just gotten way worse since school has started. So I am going to try to get her back in OT and joined this group to learn as much as I can and get new ideas. I have basically done "milking". i wasnt aware that that is what i was doing but she has always enjoyed me rubbing her. Even when she was little she would always ask me to "tickle" her skin all over. Sometimes really lightly sometimes more of a message. No i have not read that book I will have to get it.

Jennifer Ann - posted on 10/31/2013

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Oh ok yes Celeste that makes since. Thank you very much!!! Do you have any sugegestions for her teacher?
She really does have a great teacher and asked for any information because she has never heard of SPD.

Celeste - posted on 10/31/2013

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Brushing- you use a surgical brush. It brush them with a firm hand, their limbs, back, stomach. Joint compressions, I usually start at their shoulder-have one hand on the shoulder and another hand on their elbow and push (does that make sense?). You do this with each joint in their arms and legs, including fingers, 10 x with each joint.

I work in special ed, and a lot of our kids have high sensory needs.

Jennifer Ann - posted on 10/28/2013

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Celeste no, none of that was suggested. Only a few things like a heavy blanket or popping bubble wrap.Can you explain brushing and joint compression? It is also a fight ever morning with clothes and socks. SHe will try/throw a fit about at least 5 pairs of socks before she "finds" the right pair. She says the others just dont feel right.

Jennifer Ann - posted on 10/28/2013

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Please disregard Michelle's comment. IDK how it had me pulled up under her. Weird...
Yes Mary, I have years ago. The OT gave her a test after 6 months and then her insurance claimed she was "cured" enough n refused to let her continue with the therapy. I had my son 11 months ago and had to take her out of gymnastics. This is basically when it all started. I know they go through a jealous phase when a new sibling comes but after almost a year you would think it would be better. I recently read that being in activity helps so I am sure that having to take her out of gymnastics didn't help. I also came across vestibular disorder last night and she has many of the issues that was listed. Is this something separate or is this part of SPD? She has a really hard time following directions and I thought she was just having an attitude/ being difficult but maybe she is truly struggling with it. I have recently met with her teacher to inform her about her disorder. She had never even heard of it. But she said she will help me get her back in therapy. She said they should let me out her back in with a teacher request.

Michelle - posted on 10/28/2013

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Yes Mary, I have years ago. The OT gave her a test after 6 months and then her insurance claimed she was "cured" enough n refused to let her continue with the therapy. I had my son 11 months ago and had to take her out of gymnastics. This is basically when it all started. I know they go through a jealous phase when a new sibling comes but after almost a year you would think it would be better. I recently read that being in activity helps so I am sure that having to take her out of gymnastics didn't help. I also came across vestibular disorder last night and she has many of the issues that was listed. Is this something separate or is this part of SPD? She has a really hard time following directions and I thought she was just having an attitude/ being difficult but maybe she is truly struggling with it. I have recently met with her teacher to inform her about her disorder. She had never even heard of it. But she said she will help me get her back in therapy. She said they should let me out her back in with a teacher request.

Celeste - posted on 10/28/2013

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Has the OT suggested some kind of sensory diet? Like brushing, joint compressions, etc?

Mary - posted on 10/25/2013

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Have you talked or seen any professionals regarding her case...or, if you have received advice before then maybe you need to try and recall whether there's any particular circumstance that maybe has triggered her to behave in that manner again.

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