what would you do if you find out your 12 year old daughter has MD

Nell - posted on 06/26/2010 ( 6 moms have responded )

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we found out last year our daughter has MD her dad has it. We brought her to the doctor to see what we can do to help her with her speech,and they wanted to know the family history when they heard that her dad has MD

That's when they did a test in Rochester that's when we found out. I was so sad i didn't want my daughter to see. I know she young. but you know what she will have to go though,and it hard to deal with.Because i see the pain her dad is in every day and to have her have that it hard

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Brandi - posted on 06/28/2010

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WOw - that's a rough one. All I would say is if it was me I would not treat her any different, not keep her out of stuff just becuase of what she has. I also think honesty is the best policy. Most kids are okay if they know what is happening. This is by no means an equal comparison, but it's almost like shots. Kids who come in and i have to give them their shots who have been told they are coming for other reasons freak out. Kids whose parents are honest and tell them in an age appropriate way that they are coming in to get their shots , they do much better coping with them. Like I said that is no way in the same category as dealing with a devestating diagnosis like MD, especially having gone threw it already with your husband. I wish you the best of luck and I hope that things will be okay for you guys and know you can find community support for almost anything now.

Nell - posted on 06/28/2010

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Thank you!! I have told her from the day we found out. that she needs to live her life like she doesn't have it. Because if she let's it bother her to much she won't have a life. with finding a specialist that wouldn't help because there is nothing that any doctor can do. But gives pain pills for the pain. Her dad is going through it right now,and each person is different some have pain and some don't. I love my daughter and you don't wish this on anyone but for some reason we kinda thought it would be our daughter that would have MD we have a son and we don't know about him.

Valerie - posted on 06/27/2010

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I would start educating myself and find a good support group...all the best...treat her as you always have...she wants to be treated normally...all the best

Angie - posted on 06/27/2010

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I'd hit my knees and pray like crazy then I'd find the best specialist in my area (or beyond).

Sandra - posted on 06/27/2010

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You need to remember that kids are resilient and are stronger then ever these days. Just make sure that she gets to be a kid and enjoy it to the fullest because she will have a lot more challenges as an adult.

Monica - posted on 06/27/2010

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I'm very sorry you are having to go through this. Find a local support group for both your daughter and yourself.

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