special needs children
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Tina - posted on 03/11/2009
God bless you Keri. I don't deal with anything close to you but it's day to day for me and it's hard doing it on your own. If that's you in the pic with the little girl, well, you're beautiful and the stress hasn't aged you at all! I will remember you and your son, your entire family, in prayer. Oh and it's anesthetic
(you were close). I did my extern at Anesthesiology, University of Md and had to learn to spell it! LOL. Still unemployed but I can spell!
Keri - posted on 03/10/2009
I have 4 kids. 21,16,14, and 9. My 16 year old was diagnosed at the age of 6 with Frederichts Ataxia. Which is progressive, his nerves gradually quit working or seize up. A side effect is scilliosis, he was using a walker to get around and he was still pretty independant. His father left 7 years ago and it took me a long time to get back on my feet, but i did it. Got a good job, bought a mobile home, was going to upgrade and buy a house etc... January 10, 2008 he had surgery to fix his back, they put a rod in his spine. Well the surgery didnt go well and he had an alergic reaction to the anestetic (cant spell) and all his major organs shut down. He was flown to another hospital on life support and a long story short everything but his heart came back. After 8 months in another province he received a heart transplant. He is doing fine now but from being in bed for 8 months he lost his use of his legs, suffered a couple strokes so lost use of one arm and his is confined to a wheelchair and needs 24 hour care.
Needless to say i lost my job, and now drowning in bills. He is home with me now and i cannot work, finding assistance is a joke. I am on social assistance but what they pay barely covers my rent (morgage) payments. Anyone else here from Canada? I love my son so much, but this is draining me physically, emotionally, and financially. How does everyone do it?
Ajia - posted on 03/05/2009
I'm not a mother of a special needs child, but I'm am a respite caregiver for special needs children. I've worked mostly with children on the Autism spectrum. It's honestly the most challenging and rewarding job I've ever had.
Marnie - posted on 03/05/2009
I am also a single mom of three boys. They are 6,5 and 2. My two year old has down syndrome and their dad left when the baby was 6 months. I live with my mom, which is a huge help...I would never make it without her help!!
Dawn - posted on 03/04/2009
There is a lot of us out here......I am a single mom of 3 wonderful boys ages 7, 12 and 14. My 7 year old has Batten's, he was diagnosed in June of 2007. Every day is a battle but I take it one day at a time and just make the best of it!