Spinal Defects / Lipomyelomeningocele / Tethered Cord/ Spina Bifida

For people interested in discussing all aspects of spinal defects and the effects on the lives of all people involved. Our daughter has lipomyelomeningocele, tethered cord, and an intraspinal syrinx but we invite the numerous other spinal defects as well, since there are so many similarities to discuss among them all. We are often grouped under spina bifida, since they are in the same family of spinal dysraphisms.