Ashley - posted on 05/28/2011 ( 4 moms have responded )
Hello everyone! This is my first time posting. I am writing about my wonderful, beautiful 2 and a little bit year old daughter, Paige. Starting at 6 months, Paige essentially stopped growing and continued to fall off her growth chart. She's been through tests for Celiac Disease (3x), Crohn's, Cystic Fibrosis, Hyperthyroidism and many more. Over the last year is when the testing began to really intensify as her immune system is very low. Basically every time she gets a stomach flu or the classic rotavirus, she needs to be hospitalized. In one incident, she lost 5 lbs in a matter of days which is enormous when you only weigh 19 lbs and are nearly 2 years old to begin with. She is currently seeing her pediatrician every 3 months to get weighed and her measurements taken and is also being seen by a pediatric endocrinologist at the Alberta Children's Hospital because in her last course of blood work, her human growth hormone or insulin growth factor came back under 25 and the reference ranges is 55 - 327. The pediatric endocrinologist said that while this is very much a possibility, she doesn't exhibit the typical symptoms of human growth hormone deficiency. Normally, they only have a short stature, not delayed weight gain and she is advanced for all of her developmental milestones. We are currently waiting to do more intensive testing at the Children's Hospital that will consist of Paige being on an IV and receiving chemicals to make her growth hormone react and while doing this, have blood taken every 15 minutes for an hour to measure the growth hormone being released as well as bone scans as children with growth hormone deficiency typically have smaller bones than "regular" children. I am wondering if there is any other moms out there that have experienced the same thing? My daughter is very intelligent for her age and everywhere I go, I get shocked responses about the size of my daughter. She still fits in 6-12 month clothing and will be 2 1/2 in August. It's not only her height and weight that are affected - her hair does not grow normally nor do her feet. Essentially, she is a 2 1/2 year old trapped in a 1 year olds body. Currently, Paige measures approx 20 lbs and 29 1/2" tall. Her birth weight was 6 lbs 14 oz and 21" long. Anyways, is there anyone else out there going through the same thing?