2 year old with high fever had a febrile seizure? Have you ever heard of this?

Nicole - posted on 12/16/2010 ( 32 moms have responded )

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Tuesday night my 2 year old son started feeling sick around 7pm. We bathe him, took his temp at 99.0. gave him some mortrin and put him to sleep. Well he fell asleep with me in my bed. Then around midnight I noticed he was trying to cough. When I picked him up he was struggling to breathe, his eyes were rolled back and he was completely limp. I was in panic shock, I thought my baby had stop breathing. We tried patting his back blowing in his face calling his name. I was so scared I had no idea what was happening. We call 911 and they came within 15 mins. By the time they arrived my baby love coughed and cried a bit then went into a deep sleep. Thats when they told us he had had a seizure! A seizure what? why? how? after a seizure the body falls asleep because it is exhausted. We went to the hospital, they ran a few tests, and confirmed he had had a febrile seizure due to his high fever. His fever had spiked to 103.5! he just started having symptoms of getting sick that night his fever was only 99 when he went to bed. The ER doctor and his pediatrician both confirmed that it is common for young children to react to high fever in such a way. Fortunately, there is no long term brain damage and the seizure did not affect his development.
My son still has a fever but we are controlling it by alternating mortrin and tylenol. My son has had a really high fever before but never a seizure. Why this time? Has anyone every had this happened to their child before. I guess its more common than I thought. That was the most scariest nights of my life!! I had no idea a high fever can cause a seizure.
Thanks for your thoughts.

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Farmer - posted on 09/17/2012

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(In reply to Casey) If your baby has a fever, TREAT the fever ASAP! BRING IT DOWN as quickly as you can without shocking the body, That is what I was told. YES, we usually NEVER give my daughter any medicine unless needed. I have never given her Tylenol or any fever reducer unless she is uncomfortable and cannot sleep. I was told unless she is physically uncomfortable to not give medicine and just let the fever run its course. She has had fevers before and usually doesn't EVER need anything. Well, my daughter is 20 months and apparently had her first febrile seizure. She was acting perfectly normal all day, nothing out of ordinary, even put her to bed! Wasn't until I was about to go to bed and I checked on her to see her cheeks were red and she was very warm! I didn't think much of it cause our bedroom can get quite hot so I just stripped her down put a fan on her and gave her some milk ( BTW DO NOT DO THAT!! DO NOT GIVE ANYTHING THICK IF THEY HAVE FEVER. STICK TO CLEAR LIQUIDS IF THEY NEED TO DRINK) She had a fever over 100 but because she was acting perfectly normal I didn't think much of it and figured she was just bundled up too much and just needed to cool her down. She got up for a bit smiled played with toys and drank her milk. She went back to sleep like 45 min later. I noticed she was still VERY hot and took her temp, again. She STILL had a fever so I figured she caught a virus and her body was working to rid it. Nothing out ordinary..or so i thought. So again I didn't give her any medicine to bring the fever down quickly because she seemed fine and was sleeping. Well, wasn't till my husband and I heard a noise coming from the room later that didn't sound like herself. My husband walked in and yeah I have never seen him so panicked and scared in his life. I don't need to get into details but it's quite frightening to see your baby in that state! I actually thought she was dead when I ran in a saw my husband holding her! Her body was so lifeless and limp. I hope it is something she will NEVER have to go through again or us for that matter! Anyway, we rushed her to ER cause we had no idea what the heck was goin on and I thought she couldn't breathe and was dying! They said she had a febrile seizure. They told us it is common for children under 5 but they said it usually only happens once??( reading your guys' posts makes me think otherwise! ) They said if it were to happen again then they would be worried it was something else and to bring her in for sure to get it checked out?? They also said next time she gets a fever to TREAT it ASAP with a fever reducer. They said if she does have another seizure to just make sure she is in a safe spot that she can't hurt herself. Your suppost to not move them/touch them during the episode I guess. Make sure their laying down in their SIDE so if they do vomit or spit up they can still breathe. They said unless the seizure lasted more than 5 min to bring in to ER. to get checked out, but other than that there’s nothing more you can do. They assured us that since this happened once it wasn't very likely it would happen again but now I’m confused and not so sure cause it sounds like this does happen more than once! I'm also kind of worried it might be something more now! We had to stay the night at the ER and when my daughter got released her fever WAS gone. It wasn't until we got back home and when it was time to put her down for her nap that I noticed AGAIN she had a fever! I called her doc again worried it was something else cause her fever was back again so quickly, but he said unless she ACTS out of the ordinary to not be worried. Just told me to not worry, and it was not very likely for her to have another episode ..but I don't know. Its been one night since my daughter has been home from ER and she still has a fever. I've been giving her Triaminic fever reducer infant drops throughout the night and she has slept fine and hasn't had another episode...yet. I pray that will be the first and last seizure but I just wanted to share the info I learned and my experience if it can help someone. : )

Casey - posted on 12/30/2010

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Hasn't happened to us, but it is normal. A fever means that his immune system is working- it's a good thing actually. But I'm sure you must have been terrified. Has anyone ever told you not to give ibu or tylenol & let the fever do it's job? I'm not a doc, but that's what we do- no fever reducers. I noticed in a lot of these posts people said they gave ibu or tylenol & then their child seized...

Maria - posted on 10/10/2012

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I am so sorry that you went through such a scary experience! It is my understanding (from speaking with nurse practicioners) that febrile seizures are fairly common in young children, and that those who are prone to them often outgrow them by age 6. From how I understood the physical process, these seizures are actually caused by how QUICKLY the fever spikes (or dips), not necessarily by how HIGH the fever reaches.

Tiffany - posted on 12/10/2012

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As I was reading down through what others have commented on, if you are going to use cool cloths, make sure they are not too cold. COOL :). Also, if the child has a fever try to keep the head and feet uncovered. Our feet are our thermostat. Cover them, and the fever will raise. Uncover them and the fever will remain at a more normal level, most of the time unless there is something else wrong. My mom used to put my sister and I into tepid water if we got fevers that didn't come down with medicine. Not cold water but just cool to the wrist. Again not too cool as it can lower the temp too fast. Good luck again. :)

Tiffany - posted on 09/15/2015

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Update since this was a few years ago that I posted this response. I am 32 now, daughters are 8 in October and 3 and will have one more baby in about 8 months. Still no seizures. I hope that your little one has as good of luck as I have had in these many long years. So there is hope that though someone may have a febrile seizure at a young age they have a good possibility of not having another seizure later in life.

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Proudmama060313 - posted on 06/24/2017

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My daughter just turned 1 the end of May 2016 and she showed me no sign she was sick.and was laughing and playing. She was her self all day. I put her to bed around 9:30 and arond 12am she was crying so i thought she was looking for her binky because she with back to sleep around 1 am she woke up again and i came to check her and she was burning up. I picked her up and she wouldn't look at me. I was freaking out shewas stiff. I yelled to my husband we need to take her to the hospital and my friend said call 911. I told the emt she was having a seizure but they told me no she didn't she was only aggitated maybe from teething Because after she was chewing her fingers like she was going to bite them off. ER doctor told me she did have the Seizure this was her first ever. But now two days matter she still didn't look the same i don't know if she is still tired or did the Seizure do something to her eyes

Tiffany - posted on 12/10/2012

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Neither of my children have had it, yet. I say yet as I have a 6month old as well as a 5 year old. But, I had it when I was about the same age, I am 29 now. I had a very high fever, had a febrile seizure. Mine was also caused because the forman(spelling?), military nurse, put me in cold/cool water and brought my fever down way too quick. Looking back at the story though, I was having trouble breathing and my dad was in the backseat with me due to knowing CPR. My mom was freaking but had to drive. It is sad you had to learn this way, but yes, you can get a febrile seizure from having a high fever. Every time I fill out medical forms I have to select "yes" to having a seizure and have to explain when and what kind. I guess it will give the person a chance of getting another seizure later in life. I haven't experienced any since though. I would keep a close eye on your little one though just to make sure it doesn't happen again. :) God luck to you!

Jenny - posted on 12/08/2012

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My 18 month old had one yesterday and it was the most horrifying experience! He seemed fine all day and put him down for an afternoon nap. A couple of hours I went to wake him and found him on his back stiff body, twitching, foam coming out of his mouth and grinding his teeth. He had spit up so much that his hair was soaked in spitup! He was also making a weird grunting sound. His eyes were open but he was starring off into space and his eyes kept rolling back. I grabbed him and he was burning so I quickly threw him into a cool tub while he was still unconcious. After about a min of cooling him off in the tub he finally came too bit was still very out of it. I took his temp and it was 104. I immediately gave him Motrin and took him to the er min from my house. After looking him over the drs did confirm that it was febrille seizure. I was relieved but it sure hasn't erased the horrible experience of believing my child was dying or was brain dead. Anyway I hope I don't have to experience this again but if I do at least I know what it is and how to handle it.

Nicole - posted on 10/14/2012

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When my son was around that age he had one. It is the most scariest thing in the world. But he's seven now and he only had two incidents when this occured. Yes it happened a second time. They did tests and everything. But he is perfectly healthy. Just be cautious and keep fever reduce medicine in the house! It will be ok.

Amanda - posted on 10/11/2012

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Ya it doesn't matter how the fever the gets, some kids can really high fevers, my niece was at 104 one night and nothing happened. When I got fevers as a kid they would spike within ten mins so it gets hard on the body and brain.

Amanda - posted on 10/10/2012

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I went through that until I was 4 years old. When I had a fever I had to be watched 24/7. My doctor told my mom that they grow out of it because as we get older we understand that when you are sick you need to rest, but at a young age all they want to do is run and play so it makes the fever higher. I went to the hospital the first time it happened. After they sent me home mom had to call for another ambulance because about 10 mins after we walked in the door I had another one. After it happened a few times she never worried unless she couldn't wake me then they would take me in.

Jennifer - posted on 10/04/2012

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You must be so relieved he was with you when it happened! Is it possible he has had them before, but you weren't aware because he was sleeping in HIS bed at the time?

Jennifer - posted on 10/04/2012

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You must be so relieved he was with you when it happened! Is it possible he has had them before, but you weren't aware because he was sleeping in HIS bed at the time?

Jennifer - posted on 10/04/2012

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You must be so relieved he was with you when it happened! Is it possible he has had them before, but you weren't aware because he was sleeping in HIS bed at the time?

Mommy - posted on 09/30/2012

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My daughter has this and had her first seizure at 8 months. It was awful. In her case she was limp, eyes fixed and open, no response. I thought she died, worst moment of my life. it's a very common condition. She has had 6 more since, and is 2 1/2 now. We just try really hard to stop a fever before it starts.

Quaneshia - posted on 09/28/2012

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Anytime a fever reaches 102 u need to go to the ER. The high fever will cause a seizure. Usually motrin, tylenol and a popsicle will help brake the fever. If it doesn't something more is wrong and u need to get to a doctor

Jenn - posted on 09/26/2012

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My son who is almost 3 had a few of them after he turned 1. What our Dr told us to do is make sure to let your baby sleep in just a pamper and no blankets, just the fitted sheet over the matress. Try not to cuddle with him or sleep in the same bed because your body heat will bring the temp back up. Most important is sticking to the meds. On the dot. Hope your baby feels better!

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Next time your child has a slight temperature, let it run its course. Keep an eye, and remember that you can cool his body down if need be by placing cold wet washcloths on his head and feet. I would try that before giving him any meds that he might be reacting to.

User - posted on 01/22/2012

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i was very scared the first time too! i have never heard of febrile seizures before, but was told they are very common in kids. my son was 15 months when he got his first one and he has had 5 seizures since. They were all very brief about 30 seconds. the chances of your son having another one are higher becuase he has had one already. we were told there is no way to prevent them they will come with a sudden rise in temperature. my son is almost 4 and hasent had one in almost a year, and they grow out of them when they reach 5 years old.

Zandisa - posted on 12/28/2010

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My sons experienced the same thing a few weeks before his 1 year bday. He was fine one moment and next he started developing fever and my mother in-law gave his some Panado syrup. I was busy taking a bath but when I came out I saw he was not feeling well and that the Panado was not dropping his temperature. My husband and I decided to take him to the hospital and we were not even out of our drive way when he started struggling to breath and he had seizure. Luckily the hospital was 10 minutes away and when we got there he was immediately admitted and I treated. He continued to have the temperature the enter night and was in hospital for 3 days. Our Pediatrician said we that happen when the child temperature becomes too high and we should monitor and his and provide his with medication and bath to lower his temperature. I glad to say he 2 years 4 months and has had fevers but no seizures. The Pediatrician said he could have them until he's about 5-6 years so we continue to keep an eye on his fever.

Elizabeth - posted on 12/20/2010

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yes sezures are caused by high fevers too, Remember if he has another one, to say calme talking and laying him on his side is the best thing for seizures. also call 911 because seizures can kill. Here are other signs of seizures, fixed eyes, roling of the eyes, shaking, repetive motion, trouble breathing, most importian is that no seizure is the same in everyone. another tip is to check his temp every one to two hours his body at this time could not handle the fever. My son has epilepsy. He will be fine but monitor his contition until he is well. good luck

Morrisa - posted on 12/20/2010

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When my husband was a baby he had quite a few febrile seizues and he is fine now. The seizure is not caused by having a high fever but by a fever spiking very quickly. Can be a scary thing. I'm glad your little one is okay.

Amanda - posted on 12/20/2010

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i have never heard of this and is glad that u shared your story so that I may be careful to watch my children...i can only imagine who u felt and how scared you were I hope he is feeling better. my son had a fever once get up to 105 but it was only for a few min and we got it back down again but never a seizure.

Brianna - posted on 12/19/2010

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my 13 month old had a bunch of febrile seizures last night! shes been having fever for 2 days and im been treating her with infant tylenal. lastnight after supper she started having little seizures they would last only a few seconds and stop the first time she did it i thought she was having some sort of tantrum and it was so short that i was like OK?.. that was weird. but then she did it a bunch of times so i called healthlink and they said it was mini seizures so i took her straight to the emergency room were they did so many HORRIBLE tests on her... they said that they can have a bunch of mini seizures but they are usually followed by a big seizure so we are very lucky that she hasnt had a big seizure.

Jennifer - posted on 12/18/2010

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As a mother you will never be prepared to see your child in that state. I don't even know that it becomes easier to deal with. It is frieghtenign, and you are helpless. The safest thing is to monitor the temps and the seizures. you knee to know what his body doese when he is seizing. what doese his eyes and limbs do...... it helps to determin the type of seizure and can help pin point the are of brain being affected. not EVERY high fever can or will cause a seizure. just maintain his airway and roll him on his side, or hold him on his side after till he fully arouses next time.
(neuro nurse) Jen

Jennifer - posted on 12/18/2010

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It was never confirmed, but docs thought my 2-yearold had one also. My son had started with a slight fever the night before and still had it it in the morning. I had desperately needed to go grocery shopping, and since it wasn't very bad, I went ( with him along). I gave him some motrin before we left, and by the time we made it back, it was time for another dose, which I was going to give just as soon as I brought the groceries in. But, by about my second trip, I looked aver at him, and his lips, and finger nails were purple and he was just standing there staring off into space. I checked to make sure he was breathing and called his name many times without a response. I put him in our van and rushed him to the ER. By the time we got there, his fever was 103, but he was acting and looking fine. They had told me it could have been a seizure, but did no tests. ( our local ER is a joke) They gave him some tylenol and sent him home. The next day I took him to his regular pediatrician and she agreed with the er. It was incredibly scary, but that was almost a year ago, and he hasn't had one since.

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i have 3 family members and a very good friend with epilepsy. i know it can be scary. as to why, it's because th fever got so high, and the body can't handle it, so it responds in a terrible way, we were in hosptial with my son when he had a fever of 39.2+C at the begining of this year, and ended up in the ER for over 15 hrs, because they needed to watch that he wasn't fitting, and that the temp was being controled by the nurofen and panadol.

Louise - posted on 12/17/2010

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This sort of seizure is very common in the under threes. This must of been such a shock to you. All I can say is it is highly unlikely he will have another one but always be aware that very high temperatures can spark them off so act fast with a paracetamol and ibrubrophen as they can be given together to work at the same time. I am glad your son is ok and I prey that it never happens to again.

Tricia - posted on 12/16/2010

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Febrile seizures are very common in small children and don't usually cause any lasting damage nor are they a sign of any underlying problems. The general rule of thumb is that a seizure that lasts 2 minutes or less won't do lasting harm to brain tissue. There's no reason to keep worrying (although I totally understand that seizures are really scary to watch having had to watch and deal with many myself!). Just know that for the next couple years you need to be even more careful to keep your son's fevers under control as much as possible. You are doing exactly right alternating tylenol and motrin (every four hours). Lukewarm baths may also help as will lots of liquids. Next time he has a fever just keep an eye on him and call your doctor if the fever stays above 103 even half an hour after giving medicine.

September - posted on 12/16/2010

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Wow! I had no idea that a high fever could cause a seizure. Sorry I can't help but I'm glad that your son is ok. I can't even imagine what that must have been like...so scary! I hope that he feels better soon! ♥

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