HLHS - Life post Fontan

My 4 year old was born with HLHS.. He has had the Norwood, Glenn & Fontan procedures and is doing well. I am interested in talking with other post Fontan moms to hear how...


Glenn surgery

My son is due back for glenn surgery next Monday, please share your experiences of this surgery with me. Feel sick, the thoughts of him going through major surggery again, but I...



Any one have a child who has had a bi-directional glenn and or fontain surgery??

Started by Chanel on 06/17/2009 in Heart Babies

Last update on 07/10/2009 by Julia



Welcome..lets get to know each other and be there has support for each other.-Deborah


Scared to death!!

Monday, at my 2nd level 2 sonogram, (I am 22 weeks) the doctor thought he saw a heart problem. He sent us to a cardiologist that day and our fears were confirmed. The heart of...


Double inlet left ventricle

Hi. I'm new here and just wondering if anyone has a kiddo with double inlet left ventricle. Our son was born in January and had his first surgery, DKS procedure & BT shunt,...


hypoplastic left heart syndrome

Hi my son dion is 8 yrs old and has hlhs, he is doing really well at min and had his fontan september 08,

Started by Melissa on 05/21/2009 in Heart Babies

Last update on 07/15/2013 by Wendy



Hi everyone, my name is Jennifer Jopling and I am the mom of two beautiful children. I have a 6 year old daughter and a 41/2 month old son. My son Riley was born with...