15

Spina Bifida & Hydrocephalus

I am now a mom of a Myelo. Baby! She is completely wonderful! We may not know for several years more, the extent of what special needs she may have, but of course walking,...

5

spina bifida- im worried

My son had a one month check up today and dr was concerned with a demple on his back inbetween the cheeks of his butt. He has to go tomorrow to get an ultrasound on his spine to...

2

spina bifida.. im worried!

My son had a one month check up today and dr was concerned with a demple on his back inbetween the cheeks of his butt. He has to go tomorrow to get an ultrasound on his spine to...

6

Spina bifida

Hello Everyone! I have a 11 month old son with spina bifida. He has a shunt for his hydrocephalus, also a feeding tube because he is unable to eat orally. He has very low...

127

When to get a wheelchair?

My daughter has a huge list of health problems. The ones I'm considering for this post include hypotonia, difficulty walking (any distances, but increasingly difficult the...