Libby - posted on 11/09/2009 ( 4 moms have responded )
5
25
Hi everyone!!It is so nice to have a place to come to whenever you have a question or need support about our daughters.My youngest daughter Shelley (5) was diagnosed with Turner Syndrome in August '08.It was actually a total shock but relief at the same time.Shelley has always had a few features that just seemed different.Such as her swollen feet to name one thing.When I took Shelley in for a yearly well check see saw a different peditrician that day.She asked me if I had ever heard of it.My first reaction was "OH NO A SYNDROME??!!?"She reaasured me everything will be ok and that Shelley will have a normal life.The most devastating thing she said was Shelley will never be able to have children.That did break my heart.So,we did the blood test and yep classic Turner Syndrome.That was folllowed by many specialist visits.She is now taking Nutropin injections daily for her growth.Tomorrow she will be seeing the endocrinologist for the 3rd time can't wait to see what and if any results from the growth hormone she has.So I consider it such a blessing for this.I know when Shelley gets older she will ask ALOT of questions but right now she doesn't even care.She doesn't look or feel different.Shelley has such a laid back personality I think she will be fine.So that's my story thanks for letting me share!
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