Does my son have Epilepsy?

Stephanie - posted on 05/02/2011 ( 3 moms have responded )

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Hi there I am a single mum who has a 6 year old son who has been haven seizures.
It started like this First week of school holidays My son woke up at 6am as he usual does then at 9am he said to me that he was tired and went to bed he slept till 11am this is not normally for him, but I thought that he was just catching up on his sleep. He was also m=not eating as much as he usual does but that didn't bother me.
That night at 12am Malachi came into my room and said he had a iche bit so I put cream on his foot and then he wanted cuddles so I let him.
At 12.30am I felt my bed shaken and thought that it was a earthquake but then realized it was not I called for ambulance who came and we went to hospital.
At the hospital @ 4am he had another one in front of the doctors, we stayed in and at 7am and then 8.30am he had another one at 11am he had a CT scan and after that he had another one.
@ 2pm we went to wellington hospital so he could have a EEG when we got back to Lower Hutt hospital at about 7.30pm he had another one these seizures where all about 1minute. @ 3am in the morning he had another one that lasted for 6minutes.
I had been there from the time he had the first one My ex husband was not there and that was not good.
we got sent home on the Sunday. So we where both pleased.
Then is the 2 week of the holidays he had another one on Wednesday then on the Thursday he had a bit one that lasted from 7.14am to 7.30am when the amblumce
came we went streat to the hospital and got same help. On Friday this week that has gone Malachi had a MRI and it came back clear so we are not sure if he has Epilepsy and it is frustrating as we don't know what it is, or why it is happening.
One of the doctors has said the he does have Epilepsy.
Is there anyone else who's child who has got this and this has never happened before so it was a shock to me.

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Cristy - posted on 05/03/2011

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Sounds like if the EEG wasn't normal than it's Epilepsy. Now you'll be on the path to finding the right medication and dose to control your childs seizures. Children can grow out of Epilepsy and it's a condition of many varying degrees. Most people with Epilepsy are completely functional and have totally normal lives provided they are properly medicated. What you're going through now is likely the hardest part of all. Good luck. Remember, ask lots of questions until you get answers you understand. Make sure next time you're in hospital you talk to the consultant. Also, you're likely to be seen now by a paediatrician ongoing as an outpatient. They will be the best person to deal with all your questions.

Cristy - posted on 05/02/2011

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I've never had my own children experience seizures but am a paediatric nurse. What was the result of the EEG? The EEG is what records abnormal electrical impulses in the brain and indicates epilepsy. Luckily the MRI was clear as that rules out the nasty scenario of a brain lesion causing the seizures. I'm assuming the doctor would have prescribed your son some anti epileptic medications? Once your son is on a medication and dose that works for him you should be able to manage the epilepsy. Would be very scary for you though and I hope it all works out for you.

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Heather - posted on 10/15/2012

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My 10 year old suddenly developed epilepsy this past summer. I know it is frustrating to hear that your child has epilepsy, but even more frustrating is to find that having epilepsy just means that he has had one or more seizure(s) that was not directly caused by a head injury, fever, or other known illness. That said, there are many types of epilepsy and many possible causes. It will take months, a lot of tests and appointments, and possible miltiple medications to sort our what type of epilepsy he has, why it started, and how to make the seizures stop. That is why these online groups are a great place to learn more and get the emotional support that we as moms need.

Stephanie - posted on 05/02/2011

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Hi there

The EEG showed same thing that was not right I am not sure what it was but that is why he was put on Epilim he was haven 2mls but is now haven 3mls, so I am wondering does that mean he has epilepsy?

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