Sherrie - posted on 01/03/2009 ( 20 moms have responded )
I have opened this page in hopes to find more information on VATER / VACTERAL syndrome.
Our middle son (my step - son) came to live with us just before he truned 2). He was born with VATER syndrome in 1998.
Now 10, he is doing quite well comparatively, but is still experiencing learning disabilities, motor delays and other small problems.
When explained to me, I was told that it is classified as VATER syndrome when a child has three or more problems of the following:
V - vertebra
A - anal
T - trachea
E - esophagus
R - renal (kidney)
C - cardiac
L - limbs
Every case of VATER or VACTERAL is different, hence the lack of information.
I would like to speak with others who have experience, either as a parent of a child or someone who has VATER themselves to discuss experiences and treatments etc. that they have had.