Victoria Rose is a silent angel of Rett Syndrome conversations

Rett Syndrome is a neurodevelopmental disorder with no know cure.It randomly attacks little girls at the age of 6-18 months and robs them of their ability to walk, talk and the use of their hands. It bends their spines,weakens their bones and causes seizures and epilepsy. They have trouble breathing swallowing and regulating their basic functions of heart rate and blood pressure. Rett Syndrome leaves our girls profoundly disabled and totally dependent on others of their often short lives. They are often over-looked as Autistic or have Cebral palsy.

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hi again

Started by Natlyn on 02/19/2013 in Victoria Rose Is A Silent Angel Of Rett Syndrome

Last update on 02/19/2013 by Natlyn

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hi

Started by Natlyn on 02/16/2013 in Victoria Rose Is A Silent Angel Of Rett Syndrome

Last update on 02/16/2013 by Natlyn

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Retts Angels

Started by Kim on 06/28/2011 in Victoria Rose Is A Silent Angel Of Rett Syndrome

Last update on 02/16/2013 by Natlyn

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new to this group

Started by Jeanette on 12/18/2010 in Victoria Rose Is A Silent Angel Of Rett Syndrome

Last update on 12/18/2010 by Jeanette

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today's appintment @ The Childrens Hospital Co

Started by Vickielynne on 07/31/2009 in Victoria Rose Is A Silent Angel Of Rett Syndrome

Last update on 07/31/2009 by Vickielynne

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Jesus sent me a angel...Her name is Victoria Rose

Started by Vickielynne on 06/23/2009 in Victoria Rose Is A Silent Angel Of Rett Syndrome

Last update on 07/14/2009 by Vickielynne

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Victoria

Started by Vickielynne on 07/10/2009 in Victoria Rose Is A Silent Angel Of Rett Syndrome

Last update on 07/10/2009 by Vickielynne

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Victoria Rose is a silent angel of Rett Syndrome