Vickielynne - posted on 06/23/2009 ( 2 moms have responded )
Hi, I searched all the groups and there wasn't a group for Rett Syndrome .We need to get the awareness out about this devastating girl disorder. My angel was diagnosed December 27 2006 , We spent three long years looking for the correct diagnosis . I am the Executive Director of The Victoria Rose Rett Syndrome Society we are currently raising money to open a clinic at The Children's Hospital Denver Colo. I thought it would be nice to have a place to share our stories and help each-other with the day to day unexpected trials that happen to our angels that have Rett Syndrome. God Bless Vickie
we walk amongst angels...